Sex / Intimacy Aversion Pre-Implant (Help pls!)

The final frontier. Deciding when, if and how.
tobenormalagain
Posts: 94
Joined: Mon Oct 18, 2021 7:56 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby tobenormalagain » Tue Nov 16, 2021 11:39 am

I'm in this exact boat. 55yo male, fit, (not overweight), no hypertension, no diabetes, normal T, normal thyroid. Worsening ED since late 20s and have spent countless hours worrying, fretting, being anxious, and trying to figure out why, why, why? Yes, I totally get it-the loss of self esteem, demasculinization, depression that accompanies ED, and the disappointment with all the known treatments. All of the useless platitudes, "if she really loves you...", "sex isn't everything", "penetration isn't the only form of sex" mean absolutely NOTHING, ZERO, NIL, when you're still a relatively young man and your dick doesn't work at all. Not to be too graphic, but my ED has progressed to the point that if a breathtakingly gorgeous woman with an outstanding body wanted more from me that a kiss, I couldn't produce anything other than a completely limp member. To me (and most men), that is absolutely devastating and messes with your mind. I have an appointment in 2 months to discuss implants and though I'm not expecting to be a porn star stud, I'm not dead yet and would like a crumb of a normal sexual life again.
Last edited by tobenormalagain on Tue Nov 16, 2021 3:52 pm, edited 1 time in total.

abhishek26
Posts: 249
Joined: Sat Feb 20, 2021 12:23 am
Location: Florida

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby abhishek26 » Tue Nov 16, 2021 3:00 pm

tobenormalagain wrote:I'm in this exact boat. 55yo male, fit, (not overweight), no hypertension, no diabetes, normal T, normal thyroid. Worsening ED since late 20s and have spent countless hours worrying, fretting, being anxious, and trying to figure out why, why, why? Yes, I totally get it-the loss of self esteem, demasculinization, depression that accompanies ED, and the disappointment with all the known treatments. All of the useless platitudes, "if she really loves you...", "sex isn't everything", "penetration isn't the only form of sex" mean absolutely NOTHING, ZERO, NIL, when you're still a relatively young man and your dick doesn't work at all. Not to be too graphic, but my ED has progressed to the point that if a breathtakingly gorgeous woman with an outstanding body wanted more from me that a kiss, I couldn't produce anything more than a completely limp member. To me (and most men), that is absolutely devastating and messes with your mind. I have an appointment in 2 months and though I'm not expecting to be a porn star stud, I'm not dead yet and would like a crumb of a normal sexual life again.

Amen to that brother! Actually, look at my fucking age lol!
24 y/o suffering from sudden onset of severe ED (from previously having no ED at all). perfectly normal penile doppler and blood/hormone/urine test results. UPDATE: diagnosed with tight pelvic floor dysfunction :roll:

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby Lost Sheep » Tue Nov 16, 2021 4:33 pm

tobenormalagain wrote:I'm in this exact boat. 55yo male, fit, (not overweight), no hypertension, no diabetes, normal T, normal thyroid. Worsening ED since late 20s and have spent countless hours worrying, fretting, being anxious, and trying to figure out why, why, why? Yes, I totally get it-the loss of self esteem, demasculinization, depression that accompanies ED, and the disappointment with all the known treatments. All of the useless platitudes, "if she really loves you...", "sex isn't everything", "penetration isn't the only form of sex" mean absolutely NOTHING, ZERO, NIL, when you're still a relatively young man and your dick doesn't work at all. Not to be too graphic, but my ED has progressed to the point that if a breathtakingly gorgeous woman with an outstanding body wanted more from me that a kiss, I couldn't produce anything other than a completely limp member. To me (and most men), that is absolutely devastating and messes with your mind. I have an appointment in 2 months to discuss implants and though I'm not expecting to be a porn star stud, I'm not dead yet and would like a crumb of a normal sexual life again.

As one of those testifying to the truths which you find unpersuasive, I accept that your experience has been opposite of mine. I do recognize that even the best attitude toward my own E.D./impotence could not reverse 100% of my feelings of worthlessness and diminishment of my self-esteem and confidence (not even close). But you do not have to let it crush all the joy in life or even the joy of relationships - or sex. For example, can you orgasm through fellatio?

OK, stepping down from my pulpit, let me contribute somethings you might find actually useful (and acceptable) advice and support.

Congratulations on taking action and getting an appointment (embarrassment prevented me from asking for medical help for far too long). Ask if anyone has a cancellation you might be able to slip into to get your treatment accelerated.

I found oral medications to be effective for several years. I don't know if you have experience with them. I skipped past suppositories and injections with the consent of my primary care physician based on my extensive research and testifying to my clinical symptoms. Having his confidence in my judgement, I believe, was critical to getting approval for the implant surgery. So, I advise you to make yourselve an integral part of your health care team. (I do not fault patients who prefer to just leave decisions to the professionals, but that is not my style, so I recommend involvement.) I am a participatory patient.

Are you using a Vacuum Erection Device to maintain your penile tissue elasticity and flush blood through those tissues? I higly recommend it (as do many urologists). There are a couple of protocols discussed in FrankTalk. They do not involve using the constriction rings (those are just used for sex, which I found to be both problematic and unsatisfying).

I will digress a bit (back to my earlier attitude) and relate that I went on a dating site and advertised that I was functionally impotent and seeking a woman willing to be my "lab partner" in my journey from impotence to potency. Putting it explicitly, the essentials were that she would 1) have sex with such a man, 2) accompany him through the surgery and 3) continue having sex with him after implant. I got several applicants, some positive kudos (mostly for my courage and candor) and no condemnations. You can draw you own conclusions about how necessary women find an erection in a sexual relationship.

I wish you a good outcome.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

tobenormalagain
Posts: 94
Joined: Mon Oct 18, 2021 7:56 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby tobenormalagain » Tue Nov 16, 2021 5:31 pm

Thank you Lost Sheep. I appreciate the information and helpful suggestions. Unfortunately, Cialis, Viagra....do absolutely nothing, zero, nada, for me even when I triple or quadruple the recommended dosage. I abandoned Trimix after I began developing Peyronies so there really isn't much left out there for me. Now, my unit is almost completely flacid and the only way of ever orgasming is by viewing porn and masturbating. It's pretty pathetic and I am beyond embarrassed and depressed. I do have an appointment as I alluded to but unfortunately, I am bracing to pay the $17,000 all out of pocket-ouch!
Last edited by tobenormalagain on Tue Nov 16, 2021 11:47 pm, edited 1 time in total.

Time2Change
Posts: 427
Joined: Sun Sep 13, 2020 7:32 am

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby Time2Change » Tue Nov 16, 2021 6:47 pm

Yes, my ED caused a ton of damage to me and my relationships.

My ED absolutely led me to avoid intimacy. And it led my wife to avoid being intimate with me.

It wreaked havoc with my confidence in many areas of my life.

And yes, my implant has brought about a change in me. I'm beginning to regain my confidence. I regularly initiate sex with my wife now. And I'm generally happier in all areas of my life.
55; ED for 23 years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

Lost Sheep
Posts: 6162
Joined: Mon Jul 04, 2016 11:16 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby Lost Sheep » Tue Nov 16, 2021 7:56 pm

tobenormalagain wrote:Thank you Lost Sheep. I appreciate the information and helpful suggestions. Unfortunately, Cialis, Viagra....do absolutely nothing, zero, nada, for me even when I triple or quadruple the recommended dosage. I abandoned Trimix after I began developing Peyronies so there really isn't much left out there for me. Now, my unit is almost completely flacid and the onlyway of ever orgasming is by viewing porn and masturbating. It's pretty pathetic and I am beyond embarrassed and depressed. I do have an appointment as I alluded to but unfortunately, I am bracing to pay the $17,000 all out of pocket-ouch!

You're welcome, tobenormalagain,

I suggest you investigate financing arrangements with the manufacturer (call the Patient Liaison to find out how) or payment plans with the surgeon/hospital/surgery center. As you get closer to a surgery date you can start making inquiries.

I reiterate that a VED can help maintain size.

I wonder (if it is not too personal) if when you masturbate, does any engorgement or rigidity take place? Come and go? Can your penis stand up at all while being stimulated? Have you tried the so-called "artificial vaginas" available in sex shops? Has any woman ever performed fellatio recently? (I found, late in the development of my ED that fellatio would still produce sizable engorgement and a moderate amount of rigidity - at least enough to entertain my partner.) :)
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

LuisFernandez
Posts: 408
Joined: Tue Jun 16, 2020 8:45 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby LuisFernandez » Tue Nov 16, 2021 8:30 pm

tobenormalagain wrote:Thank you Lost Sheep. I appreciate the information and helpful suggestions. Unfortunately, Cialis, Viagra....do absolutely nothing, zero, nada, for me even when I triple or quadruple the recommended dosage. I abandoned Trimix after I began developing Peyronies so there really isn't much left out there for me. Now, my unit is almost completely flacid and the onlyway of ever orgasming is by viewing porn and masturbating. It's pretty pathetic and I am beyond embarrassed and depressed. I do have an appointment as I alluded to but unfortunately, I am bracing to pay the $17,000 all out of pocket-ouch!


i don’t think you should give up on injections. i have peyronies and inject multiple times a week. the trick is to constantly do traction therapy. that is the way to treat and prevent progression of peyronies.

also try injecting just pge1 as that doesn’t contain the acidic ingeredients that tend to cause scarring
Born 1986. ED. Peyronie's.
Considering an Implant. Consulting with Dr. Eid.
Using Cialis 10mg/day + 20mg for sex. Injections of PGE-1.
See my story: viewtopic.php?t=15016

ScrewedbyDoctors
Posts: 201
Joined: Fri Dec 31, 2021 7:59 pm

Re: Sex / Intimacy Aversion Pre-Implant (Help pls!)

Postby ScrewedbyDoctors » Tue Jan 04, 2022 11:11 am

2 years ago got a trauma due to Trimix injections, now my penis shorter, thinner, unstable and my erections are weak. I'm depressed and I think about it all the time, I thought about having an implant, but I can't do it because is risky and expensive. I think I will focus on other things than sex.
I had a trauma 2 years ago, caused me narrowing, dent and shortening. PRP injections three months ago=worse narrowing, and worse ED. Now I only have two choices: impotent or implant. Born in 1975, in a relationship with girlfriend fir 4 years


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