Starting to get cold feet a bit what do you guys think?

The final frontier. Deciding when, if and how.
Randalltx
Posts: 169
Joined: Sun Jan 01, 2023 4:27 pm
Location: Texas - Austin/San Antonio

Re: Starting to get cold feet a bit what do you guys think?

Postby Randalltx » Mon Mar 13, 2023 7:06 pm

Why delay getting the Doppler? That doesn't damage you at all. No one ever offered one to me. Had they offered it, I could have made a meaningful decision regarding my sexual health years ago before it got terrible. Don't be me. Be you. The decisive you.
76yo, ED Venuous Leak since age 40. South Texas location.
02/09/2023 24 CM Titan Dr. Hofer, Stone Oak Meth San Antonio.
@OEM 7.5L x 6.0/Flaccid 2.0L x 6.0 (Grower)
@8 months 7.50L x 6.0/Flaccid 6.0L x 6.0
@14 months 7.50L x 7.25/Flaccid 6.0L x 6.0

Mark1974
Posts: 369
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Re: Starting to get cold feet a bit what do you guys think?

Postby Mark1974 » Mon Mar 13, 2023 9:32 pm

From what I've been reading after your implant more than just your feet will be cold
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is sexual health expert Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. I also have mild BPH

Randalltx
Posts: 169
Joined: Sun Jan 01, 2023 4:27 pm
Location: Texas - Austin/San Antonio

Re: Starting to get cold feet a bit what do you guys think?

Postby Randalltx » Mon Mar 13, 2023 11:40 pm

You said:
I'm younger than you, and I have never been offered a Doppler test or any test whatsoever. In fact if I hadn't heard it here on FT or internet, I would not know about a Doppler.

I actually envy your youth. I should have received help years ago when I asked for it. I would still have the years.
I hope you regain your health in all aspects. Now, as soon as pills don't work, an implant is offered, at least on medicare. They have been around a long time. Should have been offered to me years ago is my point. Had I known I would have made it a priority and just driven an old car if I had to self pay.

It doesn't matterr what train hit you to cause your ED. They didn't even try to diagnose mine, just asked me to do the implant or shots if I insisted, but those were discouraged. I didn't want the shots because of the expense not covered by insurance. I finally decided that in my case because pills did not work much and I lost erection after a few minutes, I must have had a venous leak and getting worse through the years. My best guess. They said it didn't matter what caused it. This is the fix. I guess like a flat tire, it doesn't matter the length of the nail, just fix it. I hope you find some peace soon and feel comfortable making your decision. I did learn long ago that a decision delayed is a decision itself. Good Luck. If I can help, don't hesitate to reach out.
76yo, ED Venuous Leak since age 40. South Texas location.
02/09/2023 24 CM Titan Dr. Hofer, Stone Oak Meth San Antonio.
@OEM 7.5L x 6.0/Flaccid 2.0L x 6.0 (Grower)
@8 months 7.50L x 6.0/Flaccid 6.0L x 6.0
@14 months 7.50L x 7.25/Flaccid 6.0L x 6.0

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Mon Mar 13, 2023 11:43 pm

Mark1974 wrote:From what I've been reading after your implant more than just your feet will be cold


I don’t follow?
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Mon Mar 13, 2023 11:56 pm

[quote="PSSDorAmINormal"][quote="Hillywilly"]

Do you think masturbating too much gave you the HG? I wouldn't think flaccid/semi playing with yourself would cause damage. I'm a little jealous of your long masturbation sessions, but how could you really masturbate for several days?/quote]

100% I think it caused the damage I felt a mild pain (but overridden by the pleasure) and the tissue became hardened that same day and boom ED. Adderall up regulates dopamine, concentration and libido. Apparently urologic injuries on it are very common due to rough prolonged sex. It’s also a vasoconstrictor which inhibits wound healing. Also on amphetamines drinking eating and sleeping are of little importance so you can literal jerk for a full day which I would do and when I would cum it would be so intense no other pleasure in life could replicate it. But 30 seconds of Nirvana not worth the after effect.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Tue Mar 14, 2023 12:09 am

Gt1956 wrote:Question for me is. Has Hakky said that your injury is as healed as it will get? Does he hold out much hope for improvement for you?.


Thank you GT. I told Hakky that my injury was 4 months ago but didn’t think to ask if he thought there was more healing to be done. Asked EID what he thought right after it happened and he said they like to see how erections recover over 3-6 months so I’m right in the middle. Tough call I have lost no length just girth at the injury. My erections I would say are about 80%-90% firm on my daily 20mg cialis routine.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Gt1956
Posts: 3041
Joined: Fri Apr 05, 2019 2:47 pm

Re: Starting to get cold feet a bit what do you guys think?

Postby Gt1956 » Tue Mar 14, 2023 2:53 am

Hillywilly wrote:
Gt1956 wrote:Question for me is. Has Hakky said that your injury is as healed as it will get? Does he hold out much hope for improvement for you?.

Thank you GT. I told Hakky that my injury was 4 months ago but didn’t think to ask if he thought there was more healing to be done. Asked EID what he thought right after it happened and he said they like to see how erections recover over 3-6 months so I’m right in the middle. Tough call I have lost no length just girth at the injury. My erections I would say are about 80%-90% firm on my daily 20mg cialis routine.

Mark1974 is referring to a comment a while back by a few members that mentioned that their penises were a bit colder than a normal flesh temp. I personally didn't put much stock in it. Heck, as a young dating couple. My wife, gf at the time, had sex many times during winter activities in the snow. I'm sure my penis was very cold. She wasn't bothered by it in the least.
Ok, back on subject. I'm going to make a difficult suggestion. I think you said a deposit was riding on this so I'm guessing that you might be doing this on self pay. Just to help your mind get through those inevitable dark times while you're recovering. I'd suggest to change your surgery date to a little past Eid's 6 month timeline. Not that I think it'll change your surgery or recovery. But at those dark times you can fight back with the thoughts that you did everything that the best in the industry suggested.
It is easy to let bad thoughts consume you with doubt. A short delay might help you through those thoughts. If you feel that you can get past those thoughts of doubt that you did the right thing then go ahead with your current surgery date. Good luck.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

aussiePeyronies
Posts: 681
Joined: Thu May 05, 2022 9:44 am

Re: Starting to get cold feet a bit what do you guys think?

Postby aussiePeyronies » Tue Mar 14, 2023 3:56 am

Hilly,

We are similar in age, so I think I can relate. Strongly agree with what GT1956 said.

I was strongly against an implant during the first few years of peyronies, and the first 2 years of peyronies, with viagra, I could still have a decent sex life. My condition got to a point where I could not engage in sex at all, and the disease was just progressing further. In saying that, I saw good progress using the VED with the 3 cylinder VED protocol on the peyronies forum, it was only when I further injured myself that my condition worsened and an implant was the only option.

Try to weigh up your situation, can you still have sex? IS your current condition affecting your mental health that badly? Are you able to accept having an IPP or accept the fact that your penis is never going to be the same? Can you accept having sex with cialis for a few years?

I have an implant now, and it seems to have been a good decision. However, if I could go back 5 years ago to when my peyroneis started, I would have done VED and Restorex, taken pentox and 5mg daily cialis, abstained from sex and I am very confident I MAY have been able to heal my condition.

If you feel it's better on your mental health to just go ahead with the IPP and you can accept that you will never have a natural erection again. See what Hakky says at the ultrasound and go for it. From what I have heard, he is a great surgeon with great aftercare.

I have DM'd you as well.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm + 1cm RTE

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Tue Mar 14, 2023 12:37 pm

Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

aussiePeyronies
Posts: 681
Joined: Thu May 05, 2022 9:44 am

Re: Starting to get cold feet a bit what do you guys think?

Postby aussiePeyronies » Tue Mar 14, 2023 10:45 pm

Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.


Hilly, just to add, and this is anecdotal, in the PD forum, many members found the 3 cylinder VED to help a lot with hourglass. You could try it out for 3 months as an alternative if you aren't ready for surgery.

We are similar ages, I am implanted now, and although I am in recovery, I am liking it. However, I could not have sex or masturbation at all pre-implant.

Hope this helps.
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm + 1cm RTE


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