Postby sweaterfan » Fri Apr 23, 2021 5:56 pm
Just an update: Two weeks after getting the aquablation I felt great. Two weeks after that my symptoms returned, even worse than before. Thinking that I had an overactive bladder in addition to a large prostate (which, it was assumed, was addressed) I was put on medication and finally had comprehensive bladder tests. It turns out that my prostate size only decreased from 79 grams to 65 grams, so the aquablation failed to remove enough tissue. Very disheartening especially since I paid $9500 out of pocket and I was hoping to get my urinary problems fixed before the beginning of the year so I could schedule implant surgery. To add insult to injury, I'm the only patient my urologist treated for whom aquablation did not produce fantastic results. Yay me. I hope this does not portend a future implant catastrophe. My urologist is suggesting TUVP, but it has significant risks (85% of TUVP/TURP patients end up with retrograde ejaculation).
I recently had a video conference with my future implant surgeon in another city to discuss not only the implant process but also options for my urinary problem. I looked into PAE but the $12K procedure is not covered by BCBS either and the chances of it working are less than some other options. He strongly discouraged PAE. He's a Rezum Center of Excellence award winner so he favors Rezum as the next step. I had already done some research on Rezum and there is a local Center of Excellence urologist in the same practice as my regular urologist. I went to see him and he's starting over at square one to ensure I have a prostate problem, not a bladder problem. More tests, more delay. Yay.
Late last year I called BCBS and they told me than an implant was covered by my company's plan, subject to pre-determination for medical necessity. My idea was to get my urinary condition addressed then go for the implant. When I mentioned BCBS to my future implant surgeon a few weeks ago he said right away that BCBS would not cover it. His staff confirmed what he said, and I also called BCBS only to find out there's an exclusion for the procedure. Had they told me that last year I would have enrolled in Medicare instead of re-enrolling in my company's plan. Now the implant will be postponed to next year, assuming my prostate/bladder problem can be identified and resolved.
It's the second time BCBS has given me or one of my providers the wrong answer. I can live with "no" as an answer, but for heaven's sake give me the right answer the first time. I already stopped HSA contributions as required by Medicare and have an advisor who will help me with choosing Medicare Advantage/Medigap when we get closer to the end of the year. By the time I get an implant I'll be too worn out to use it.
Thanks to all of the kind folks on FT I was able to do a lot of research and create a list of questions for the surgeon regarding the implant. He was impressed with the knowledge I accumulated and consultation went very well. Looking forward to 2022.
Keep pumping, boys!
Born 1956, TRT, Peyronies (no improvement after 1 cycle of Xiaflex so discontinued), using alprostadil but have possible VL. Considering an implant. Aquablation for BPH Nov 2 2020, TURP 6/14/2021.