dashriprock24 wrote:Hello everyone!
I'm 34 years old and have been dealing with ED, Hard Flaccid for 15+ years, and more recently the latest 5 years Chronic Pelvic Pain and Pudendal Neuralgia symptoms. This all started afteR a bike accident where I hit my genitals very hard when I was younger. I have been using Cialis on and off for 5 years, have done pelvic floor exercises and stretches for 3 years, have had 3 sexual therapists to address psychological issues, and have tried many innovative treatments like PRP, stem cells, and even Class 4 Laser Therapy. The only thing I haven't tried wholeheartedly is trimix or other injections, mainly because I don't want it to irritate my symptoms.
I have been to many top urologist, including Dr. Lawrence Levine at Rush in Chicago, IL. All have concluded that my blood flow looks great and can't tell why I would struggle with ED. Many have said it's psychological, but I deal with extreme numbness, so much that I can't really feel the left side of my penis, and when I orgasm I can only feel pleasure on the right side. My hard flaccid comes and goes, and my pelvic pain has improved dramatically from the stretches I have done the past few years. All that being said, my ED persists, and even though I can sometimes get an erection for sex, other times I can't, and even when I do I never know how long I'm going to last. This psychological stress has lead to occasional PE as well.
I met with Dr. Helo at the Mayo Clinic in Rochester, MN back in May and she is onboard with me getting an implant and is ready when I am. Was going to fly out and see Eid but I like the idea of being close to home and she has reputable men I have talked to who can advocate for her. I understand I will probably have to get 4-5 revisions in my life unless the implant and procedure improves overtime. 15+ years is long enough and I think I'm ready. I'm happily married and my next step is talking about this to my wife with my doctor. She is hesitant I can tell because of how life changing of a procedure this could be for me if it's not the right move.
Here are my questions if anyone can offer insight:
If I had a venous leak this would be a no brainer, but instead I have problems with numbness and lack of sensation. I know the implant won't fix those sensations, but can anyone chime in who had numbness, got the implant, and felt like it was worth it?
My doctor did the stretch test and I'm sitting at 6.75 in. BPEL I'm usually over 7. I'm planning on pumping a few months to get the most out of that. Are the stretch tests all that reliable? I heard some doctors don't even do them anymore.
Does the penis look/feel substantially different when engorged/aroused compared to when you're not when the implant is fully inflated? In other words, if I wasn't aroused or engorged, would it be relatively the same size or smaller when pumped all the way?
Thank you!
Hey man! i was in your shoes less than 2 years ago, feel free to go through my posts to see my journey through this terrible ordeal.
i was notified by a poster here (Fucked0ne) about a doctor who is postulating about the causes of HF and how to treat it (https://auanews.net/issues/articles/202 ... ric-reflex)) . based on this article, i think we are much closer to HF being generally recognized, with treatments plans made available within a few years. you have a wonderful partner who is understanding so you are not alone in dealing with this. if the option is there to wait and see what can develop in the next few years. it would be best to do that. Leave the implant for when your circulation gets too fucked to treat anymore.
for what its worth, i dont regret my implant at all, it eliminated the constant dread of HF and its grip on my life. if i had known about this i would have decided to wait and maybe even pay this doctor a visit to see what he can do. there is hope now.
