Dr. Ralf Herwig claims that he cures Venous Leak

[Echegollen]

I'm not using them yet because the pills still somewhat work for me. Search "pge1 enlargement". As soon as the pills quit working, I cannot wait to get on caverject/pge1 and gain size.

Is your ED caused by a venous leak?

[wolfpacker]

Yep. I damaged it by doing penis stretching exercises several years ago and they causes veinous leak.

[ED2013]

This is my first post on this forum - let's hope it's a useful one.

I'm 28, had ED for four years, symptoms mirror those of venous leak exactly (and low and behold, this was diagnosed a week ago).

I've been for a consultation + ultrasound doppler at London Andrology and am in the final stages of booking this procedure at their Austrian clinic. My doppler showed that although arterial inflow was very good, my venous outflow was significant and this is evidently the organic cause of my ED.

Some people have quite rightly asked why this isn't available on the NHS or used by any other large public health body and there's a simple answer to that: economics. A treatment will ONLY be implemented on a grand scale if its efficacy is reliably and consistently demonstrated over a significant period AND it is cost-effective. These two factors are inseparable. This doesn't mean treatments outside the scope of public health aren't worth trying - it simply means that by trying these treatments and stepping out to the frontier of medicine you are exposing yourself to more downside risk (usually monetary) but also possibly a better treatment outcome (you hope). In the British press there are stories on a monthly basis re: new drug treatments that haven't been taken up by the NHS due to cost, but that are demonstrably more effective than the treatments currently available; thus, it isn't always a matter of lack of efficacy. That being said, why MORE research hasn't been done into sclerotherapy is strange, but far FAR stranger things have happened.

The use of Sclerotherapy in a non-research setting to treat ED is both novel and extremely expensive (for what is basically a glorified injection + X-ray) and I'm informed its efficacy depends entirely on which veins in your penis are the leaky ones - it's therefore too much of a gamble to be used in public health. If the veins closed off by the procedure (which I'm also told aren't case dependent - its the same ones each time) are the ones causing your venous leak, then prepare to be thrilled by the results. If those veins they close off weren't even pathological in the first place, you've just set fire to £3500 and your journey through the ninth circle of hell continues (but at least no further damage has been done).

I'm more than happy to fork out for this procedure as I'm close to the end game with my ED now. Before getting an implant and getting my entire member hollowed out, I want to be sure EVERYTHING possible has been ticked off the list. If this sclerotherapy procedure doesn't work, I'll become a pill popper until their efficacy tails off, then it's probably onto the operating table unless something completely unforeseen in the world of ED research trials comes up.

I'll obviously be keeping all of you in the loop on this and let you know how my experience goes. I'm not hopeful at all that it will work, but that's purely a psychological protection mechanism - a GP that I respect hugely and that is extremely knowledgeable told me that, if I'm sure money isn't an issue, this is absolutely worth trying.

Feel free to fire any questions my way.

Peace.

I was offered surgery for venous leak as well. The surgeon was very enthusiastic. When questioned in writing by email, he admitted that the surgery may or may not work, and even if it did work, it is NOT permanent. The veins will leak again in time. I know of only one Franktalk member that had successful surgery for venous leak, and he was back to square one within a few years.

[Seeking]

I can understand any point made about whether this is a really someone from London Andrology pushing for sales etc. but all I can really do is just report honestly my experience and people can take it or leave it. It's a valid point though - this industry is rammed solid full of spammy nonsense so its hard to separate the useful from just the 'noise'. I'm really glad this topic has received some interest though - ill absolutely be providing all the info needed right here.

Re: the question about my venous leak, I see that as just a physical classification really...I don't see a reason why - as a result of vein damage or some other event - you can't develop leaky veins at any point in your life. It's true though that alot of venous leak cases are congenital, but this is a poorly understood area in general so yeah.

[Echegollen]

I can understand any point made about whether this is a really someone from London Andrology pushing for sales etc. but all I can really do is just report honestly my experience and people can take it or leave it. It's a valid point though - this industry is rammed solid full of spammy nonsense so its hard to separate the useful from just the 'noise'. I'm really glad this topic has received some interest though - ill absolutely be providing all the info needed right here.

Re: the question about my venous leak, I see that as just a physical classification really...I don't see a reason why - as a result of vein damage or some other event - you can't develop leaky veins at any point in your life. It's true though that alot of venous leak cases are congenital, but this is a poorly understood area in general so yeah.

When are you planning to have your surgery at the London Andrology Institute ?

[Seeking]

Absolutely no later than end of September 2015. I'm shooting for a mid-August or mid-September appointment.

[Echegollen]

Absolutely no later than end of September 2015. I'm shooting for a mid-August or mid-September appointment.

Thank you very much for your willingness to share your experience with the rest of us. You don't know how much it means to me... May God bless you.

Can't wait to hear from you!

[Seeking]

Confirmed my procedure for 5th August. I'll be on a course of Cialis daily for a month afterwards, which will cost a further £80 and was not clearly communicated to me at the beginning but that's not really a biggie for me, regardless of whether I think this will work or not, a procedure like this needs to be ticked off my list ASAP so I can start researching implants (injections have so far left me with a throbbing pain). The fact ive now noticed my first signs of size reduction (I.e atrophy) since this began means the clock is now well and truly ticking.

My hopes are actually not high for this procedure, but as stated I'll be keeping all of you closely in the loop.

[gollam121]

Hi Seeking,

Its been sometime since I have been active on this thread however I had a chasing email from the London Androlgy Center yesterday asking if I was going ahead with my surgery in Austria. I have been hesitant to move forward primarily based on the cost outlay and I guess the potential disappointing outcome.

Your reasoning's from your own experience make a lot of sense in terms of the last viable stop before the final solution which is the implant! As to why this is the only clinic offering this treatment I had very much the same questions as others on this thread but when I think hard about it I've had 23 years of different Urologists (NHS & private) contradicting each others practise with one prominent prof telling me he wasn't sure a venous leak actually existed!

If you are ready to undertake this costly but routine surgery I would really appreciate your feedback because if it all goes well and I pray it does for you I think I will go for it myself by year end.



Good luck.

Gollam.

P.s. I'd be happy to stay on PD5 drugs for the rest of my natural life if this surgery supported their total effect 100% of the time / every time!

Absolutely no later than end of September 2015. I'm shooting for a mid-August or mid-September appointment.

[Seeking]

Hi Seeking,

Its been sometime since I have been active on this thread however I had a chasing email from the London Androlgy Center yesterday asking if I was going ahead with my surgery in Austria. I have been hesitant to move forward primarily based on the cost outlay and I guess the potential disappointing outcome.

Your reasoning's from your own experience make a lot of sense in terms of the last viable stop before the final solution which is the implant! As to why this is the only clinic offering this treatment I had very much the same questions as others on this thread but when I think hard about it I've had 23 years of different Urologists (NHS & private) contradicting each others practise with one prominent prof telling me he wasn't sure a venous leak actually existed!

If you are ready to undertake this costly but routine surgery I would really appreciate your feedback because if it all goes well and I pray it does for you I think I will go for it myself by year end.



Good luck.

Gollam.

P.s. I'd be happy to stay on PD5 drugs for the rest of my natural life if this surgery supported their total effect 100% of the time / every time!

Absolutely no later than end of September 2015. I'm shooting for a mid-August or mid-September appointment.

I absolutely agree with you - when I used PD5 drugs when this thing first appeared along with kegels, I could be pretty confident that I'd perform adequately without much of a sweat...now it would simply better the odds slightly, but it'd still be a gamble, especially as I find that PD5s only help you KEEP it up not GET it up. If this procedure allows me to resort to PD5s reliably, I can delay my looking for an implant I guess. The annoying thing is though, currently an implant is the only treatment - if done correctly - that can bring your mind back to the feeling that you actually have a penis that's part of you and that isn't diseased and that you can rely on it. They're not perfect, sure, but the feeling of always having to reach for a lifeline is a little depressing.

I'll be testing the efficacy of this op via two methods: i.) my ability to get a psychogenic erection by simply watching porn (test of sexual response, which is currently 1/10) and ii.) my ability to keep a full erection once physical stimulation is taken away (test of blood retention). My results will be completely anecdotal, but I'm hoping I can report them as scientifically as possible to give the community here something to go on.

I was told the op was in Austria because the "London clinic simply didn't have room for an X-ray machine, which is used to locate the veins to be injected". This sounded like an almost comical excuse, although I know they perform implant surgeries there so I guess maybe the equipment for that just simply takes up too much space? Either way, I'm doing this thing for science now, whether it works or whatever isn't really relevant...as long as it doesn't leave me worse off than before, which is apparently unlikely (but I will investigate this). Re: your point about urology as a field in general, I think the main issues here are i.) WAY TOO MANY urologists specialise in problems of the bladder tract vs. actual sexual dysfunction, the latter of which is extremely complex and very poorly understood; and ii.) since the advent of PD5 inhibitors, I think urology as a field has essentially exonerated itself from trying to cure erectile dysfunction, happy to stick to the "throw some pills at them" strategy which is how most disorders go. To be honest what I've seen and heard from my urologists has been at best erratic and at worst downright insulting. My main urologist told me flat out: venous leak doesn't exist, without any possible elaboration. So surreal, for a disorder so mentally debilitating as this I've found the specialists in this field to be the least personable.

Anyway, until the op happens I'll be spending most of my time hassling FrankTalk members with implants about what they think of them to build up some knowledge - I've already got some amazingly helpful replies, what a fantastic forum this is.