Absolutely no luck for revision

The final frontier. Deciding when, if and how.
JohnHC
Posts: 217
Joined: Mon Apr 24, 2023 9:35 am

Absolutely no luck for revision

Postby JohnHC » Thu Sep 26, 2024 2:52 pm

Well I have absolutely no luck for the revision I need. Boston Scientific lawyers told me they'll supply the new implant under warranty, but any other out of pocket expenses won't be paid until and unless the device is removed and sent to them for analysis. So I'm stuck in the catch 22, can't pay it, but need it, they'll most likely pay once they figure it out ( unless it was Dr's error ), insurance paid for my first two but refuses to pay for the revision even though all this mess is their fault for lying to me ( told me and dr/hospital it was a covered expense then denied it over 2 months later after the second surgery ). So started a GoFundMe ( https://gofund.me/e81bf73b ) and yes the amount is high I'm asking for as I still have some costs to cover from the previous two surgeries. If I can raise the money, guess I'll be going to Dr Hakky in Atlanta and I know his self pay is around 30k. I hate having to go to a different Dr and go through all the paperwork, tests etc all over again but Dr Hakky's self pay price is much better than my current Dr/anesthesia/hospital bill would be. Nothing worse than to be in this situation and possibly be stuck this way for the next 8 years or so until I can get coverage by Medicare.....
AMS 700 CX 21cm x 12mm with 1.5cm RTE, MS pump, and Conceal Reservoir. Implanted on 4-12-2023 removed and replaced 6-22-23 with the same, 1st implant surgery had pinhole leak in left cylinder, second failure tubing at connector

jwdetails
Posts: 83
Joined: Thu Oct 12, 2023 4:43 pm

Re: Absolutely no luck for revision

Postby jwdetails » Thu Sep 26, 2024 4:53 pm

JohnHC wrote:Well I have absolutely no luck for the revision I need. Boston Scientific lawyers told me they'll supply the new implant under warranty, but any other out of pocket expenses won't be paid until and unless the device is removed and sent to them for analysis. So I'm stuck in the catch 22, can't pay it, but need it, they'll most likely pay once they figure it out ( unless it was Dr's error ), insurance paid for my first two but refuses to pay for the revision even though all this mess is their fault for lying to me ( told me and dr/hospital it was a covered expense then denied it over 2 months later after the second surgery ). So started a GoFundMe ( https://gofund.me/e81bf73b ) and yes the amount is high I'm asking for as I still have some costs to cover from the previous two surgeries. If I can raise the money, guess I'll be going to Dr Hakky in Atlanta and I know his self pay is around 30k. I hate having to go to a different Dr and go through all the paperwork, tests etc all over again but Dr Hakky's self pay price is much better than my current Dr/anesthesia/hospital bill would be. Nothing worse than to be in this situation and possibly be stuck this way for the next 8 years or so until I can get coverage by Medicare.....


sorry brother - that's really a F'd up situation. Have you looked surgeo application or even going outside the country. Cash pay could be as low as 15-20k even in the US (although with another revision I know its important to have a lot of faith in your surgeon and Hakky would make sense)
62 year old, ED+PD, Coloplast Titan 22 cm no RTE in 2019 with Dr. Irwin Goldstein => failure, now with plaque excision/tunical expansion to Coloplast Titan 26 no RTE in 2022 by Dr. Darshan Patel, now with classic pump 2024 :D

Thisworld
Posts: 159
Joined: Sun Sep 06, 2020 3:01 pm

Re: Absolutely no luck for revision

Postby Thisworld » Thu Sep 26, 2024 4:56 pm

Man, truly consider karaman in turkey. 8k for the full thing. Just saying
Hard flaccid syndrome since 2019. Trying to get better with conservative treatments but an implant is on my radar

JohnHC
Posts: 217
Joined: Mon Apr 24, 2023 9:35 am

Re: Absolutely no luck for revision

Postby JohnHC » Thu Sep 26, 2024 5:38 pm

Well evidently I might have stepped on toes at work after emailing the CEO about my situation. I called them out today after 3 weeks with no response and the HR director and our Chief People Officer want to talk and bring me up to date on their efforts and our general councils efforts to explore options against UMR and the false information UMR gave me. Another update in this long and stressful event coming soon.
AMS 700 CX 21cm x 12mm with 1.5cm RTE, MS pump, and Conceal Reservoir. Implanted on 4-12-2023 removed and replaced 6-22-23 with the same, 1st implant surgery had pinhole leak in left cylinder, second failure tubing at connector

HikerMan
Posts: 277
Joined: Sun Aug 14, 2022 9:33 am

Re: Absolutely no luck for revision

Postby HikerMan » Fri Sep 27, 2024 10:47 am

JohnHC wrote:Well evidently I might have stepped on toes at work after emailing the CEO about my situation. I called them out today after 3 weeks with no response and the HR director and our Chief People Officer want to talk and bring me up to date on their efforts and our general councils efforts to explore options against UMR and the false information UMR gave me. Another update in this long and stressful event coming soon.


Wow, is there a lesson to be learned here.

To all forthcoming implant recipients:

Do NOT proceed to the operating table without making sure this is paid for ahead of time.

Sorry for your situation, John

That bill is going to be brutal if they can't figure this out.
AMS 700 installed 12/22/22
REAR TIP Extender 5.0CM MR Conditional
AMS 700 SPHERICAL RESERVOIR 100 ML.
AMS 700 LGX INFRA PUBIC 18 cm
Dr. Jeffrey Loh Doyle- USC KECK
Prostate cancer survivor- RP performed 8/20
56, Marathon runner, John Muir Trail fanatic.

Jage64
Posts: 616
Joined: Sat Oct 22, 2022 9:38 pm

Re: Absolutely no luck for revision

Postby Jage64 » Fri Sep 27, 2024 10:52 am

Unless there's been a change in the last 18 months, Dr. Clavell is considerably less than $30k for self pay.
2/22/23 AMS 700 CX 21cm + 1.5cm RTEs. 58 yrs old, wife of 37 yrs. Penoscrotal. 100ml Conceal reservoir. Dr. Clavell. Pills failing and went right to implant, skipped the injections. 12 mos. later: 7 1/2" x 5 3/4"

easymoney
Posts: 605
Joined: Tue May 09, 2023 10:28 am
Location: West Coast Fl.

Re: Absolutely no luck for revision

Postby easymoney » Fri Sep 27, 2024 12:44 pm

JohnHC .... Consider going with a mallabble implant ..less chance of failure 3 to chose from I have a Rigicon for the last year ...cheaper .. less chance of infection .. look up a guy on here call thedriver .. had 4 failed implants put a Genesis mallabble and he and his wife are load testing the shit out of it and if you contact him I'm pretty sure hw would answer any questions you have .. good luck to you ..

ED2013
Posts: 1273
Joined: Tue Mar 05, 2013 8:15 pm

Re: Absolutely no luck for revision

Postby ED2013 » Fri Sep 27, 2024 12:57 pm

Contact Dr. Karpman. Great surgeon and self pay cost is reasonable.

JohnHC
Posts: 217
Joined: Mon Apr 24, 2023 9:35 am

Re: Absolutely no luck for revision

Postby JohnHC » Fri Sep 27, 2024 3:24 pm

Well they are going to try to get this taken care of sooner than later. They got my info and said that if UMR doesn't budge they may just have me go to Dr Hakky and see about that route. They know Boston is saying they'll supply the replacement device which is a plus and will make whatever the payment is cheaper. They ( my HR )know how long I've been trying to get this that's why they are pushing UMR through our legal team to make this right. Because of the first 2 lies if they had listened to me they would have only had to pay about 42k since that was my bill through the hospital and I had settled with my Dr. But they went through all the billing and paid the full price for both devices and surgeries etc to the tune of 186k. They said they know this is time sensitive and wanted to know if it was critical and will give an update next Wed on it's status. I told them it's been broken since Jan so it's not that imperative but sooner is always better than later. I told them I had looked at Dr Hakky but would have to pay his $400 consult fee and I didn't have that money just for him to tell me what I already knew. My only issue with Hakky is he appears to be a Coloplast person vs me being AMS. But it's in the right direction though.
AMS 700 CX 21cm x 12mm with 1.5cm RTE, MS pump, and Conceal Reservoir. Implanted on 4-12-2023 removed and replaced 6-22-23 with the same, 1st implant surgery had pinhole leak in left cylinder, second failure tubing at connector

JohnHC
Posts: 217
Joined: Mon Apr 24, 2023 9:35 am

Re: Absolutely no luck for revision

Postby JohnHC » Thu Oct 03, 2024 12:15 pm

HR notified me that today they, our Broker, and company lawyers are meeting with insurances lawyers to get a resolution on this mess. So I'm obviously hoping I hear good news today or tomorrow. HR has pretty much told me if insurance ( UMR ) won't budge that they are looking at other ways to fix this...
AMS 700 CX 21cm x 12mm with 1.5cm RTE, MS pump, and Conceal Reservoir. Implanted on 4-12-2023 removed and replaced 6-22-23 with the same, 1st implant surgery had pinhole leak in left cylinder, second failure tubing at connector


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