Greetings to my fellow forum members,
I am new here but I have been around the circuit. I am the founder and have been the administrator of the Peyronies Disease Society and our forum at www.peyroniesforum.net for over 6 years. I live in what is roughly the central part of PA and I am looking for a good implant surgeon that has done hundreds of these surgeries and who can handle some non-typical situations like some fibrosis etc. I am 3 to 4 hours from NYC, Baltimore, D.C., Pittsburgh, and Philadelphia so there has to be great doctors in that radius. I have names of surgeons but none are within that radius.
I will probably go with an AMS700 LGX but I could be talked into another model or brand. While I started on the large side, I have lost considerable length post prostatectomy followed by Peyronies Disease so I will not proceed unless I can be assured I will not lose over half an inch. I read one account on our Peyronies Society forum of a member that lost 2 inches. That is insane.
If for any reason you are hesitant to recommend for or against a doctor on the forum, just send me a private message.
Thanks for the input
Hawk
Looking for a Great Surgeon In the NorthEast
Looking for a Great Surgeon In the NorthEast
Prostatectomy 2004-Bimix caused Peyronies-Viagra had little effect. Active sex life with wife of 50 yrs- been dependent on a VED for 10 yrs. 22cm Titan w/Dr. Eid Aug 7th See my Implant Journal -> http://www.peyroniesforum.net/index.php/board,56.0.html
- Bionic_by_AMS
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- Location: NJ
Re: Looking for a Great Surgeon In the NorthEast
Hawkman wrote:I am looking for a good implant surgeon that has done hundreds of these surgeries and who can handle some non-typical situations like some fibrosis etc.
Welcome ... here are a couple that would be in your area and fit your criteria:
http://www.urologicalcare.com/
http://www.garber-online.com/
I have lost considerable length post prostatectomy followed by Peyronies Disease so I will not proceed unless I can be assured I will not lose over half an inch. I read one account on our Peyronies Society forum of a member that lost 2 inches.
"Rule-of-thumb" is to pull your penis straight out as far as possible ... that's what you'll get with an Implant. No doctor is going to guarantee your 1/2" demand. Remember a working member trumps a great looking but dead noodle ... everytime!
Robotic Prostrate surgery - Dec. 2011 - AMS 700 LGX Implant - 21 cm/3 cm RTE - June 2012
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- Posts: 67
- Joined: Mon May 28, 2012 12:30 pm
Re: Looking for a Great Surgeon In the NorthEast
Hi, wondered if you would consider Cleveland Ohio. Dr. Montague at the Cleveland Clinic is a phenomenal surgeon. He did my surgery in June 28th 2012. Like how he deals with me as a human. He also has a sense of humor that comes out after several visits. That was really important to me and made me feel very good about choosing him to do my surgery. I also did lots of research on him before I went to him. I had great care by everyone I came in can't act with during my overnight stay. Even the patient transporters were very professional and compassionate. I work for the competition, so I know how things should be. Hope to hear from you.
Age 46, Type 1 diabetes since age 6. Northeast Ohio here Tried orals, injections-single agent, bimix. AMS 700 LGX on 06/28/12 at the Cleveland Clinic by Dr. Drogo Montague
Re: Looking for a Great Surgeon In the NorthEast
Thanks to both K.B. and Bionic for their response and thanks to those that put the time in to build this resource. I know the work involved in these endeavors and all of us that use this forum owe a debt of gratitude to Paul and those that help keep it running.
K.B., I would consider Florida if that is where I had to go for best results but since bionic provided 2 surgeons the a least appear to be extremely skilled I will probably consider one of them for a consultation. While bedside manner and a sense of humor are great, they are icing on the cake to me. I would go to the most rude, obnoxious surgeon n the country if I was convinced I would get a superior outcome. That's why i went to Sloan Kettering Cancer Center for my prostatectomy and endured a dose of NYC attitude and sometimes felt like a cow being herded to market during my pre-op testing.
Bionic, I think I would have to agree with you that losing some length and gaining an erect usable penis is better than a large, limp noodle. That however does not accurately frame my choice. I currently can use a combo of Levetra, L-Arginine and a larger retainer ring from m Vacurect VED and obtain a usable erection that lasts with an engorged glans. I can also forgo the Levitra and just use the Vacurect VED with a tighter ring and get a similar but little less natural result. In reality this makes my choice between a 6 1/2" erection with an engorged glans that requires a little planning or a possible 5" implant without an engorged glans that is erection on demand. With those two choices I would save the money, time, and discomfort and keep what I have. Don't get me wrong. I am not knocking a 5" penis but I spent half a century with a 8 1/4". The reduction from prostatectomy/Peyronies Disease then again from a possible 1" plus implant loss is a significant body image issue. I would feel the same if I went from 12inches to 7 1/2 inches. I am currently using traction and the VED to try to regain some lost length prior to possible implant surgery.
I don't always feel lucky when it comes to rolling the dice with health decisions. If a surgeon cannot give me a pretty good assurance that I won't lose an inch or more, I won't do the surgery.
K.B., I would consider Florida if that is where I had to go for best results but since bionic provided 2 surgeons the a least appear to be extremely skilled I will probably consider one of them for a consultation. While bedside manner and a sense of humor are great, they are icing on the cake to me. I would go to the most rude, obnoxious surgeon n the country if I was convinced I would get a superior outcome. That's why i went to Sloan Kettering Cancer Center for my prostatectomy and endured a dose of NYC attitude and sometimes felt like a cow being herded to market during my pre-op testing.
Bionic, I think I would have to agree with you that losing some length and gaining an erect usable penis is better than a large, limp noodle. That however does not accurately frame my choice. I currently can use a combo of Levetra, L-Arginine and a larger retainer ring from m Vacurect VED and obtain a usable erection that lasts with an engorged glans. I can also forgo the Levitra and just use the Vacurect VED with a tighter ring and get a similar but little less natural result. In reality this makes my choice between a 6 1/2" erection with an engorged glans that requires a little planning or a possible 5" implant without an engorged glans that is erection on demand. With those two choices I would save the money, time, and discomfort and keep what I have. Don't get me wrong. I am not knocking a 5" penis but I spent half a century with a 8 1/4". The reduction from prostatectomy/Peyronies Disease then again from a possible 1" plus implant loss is a significant body image issue. I would feel the same if I went from 12inches to 7 1/2 inches. I am currently using traction and the VED to try to regain some lost length prior to possible implant surgery.
I don't always feel lucky when it comes to rolling the dice with health decisions. If a surgeon cannot give me a pretty good assurance that I won't lose an inch or more, I won't do the surgery.
Last edited by Hawkman on Mon Aug 27, 2012 10:05 pm, edited 3 times in total.
Prostatectomy 2004-Bimix caused Peyronies-Viagra had little effect. Active sex life with wife of 50 yrs- been dependent on a VED for 10 yrs. 22cm Titan w/Dr. Eid Aug 7th See my Implant Journal -> http://www.peyroniesforum.net/index.php/board,56.0.html
Re: Looking for a Great Surgeon In the NorthEast
I used Dr Eid. I visited another surgeon before choosing Eid. I didn't feel it was useful to talk about "loss" (compared to what?? pre-ED, pre-surgery? I didn't have natural erections pre-surgery). Instead I just asked both what was the best way for me to understand what my ultimate size would be. Both surgeons gave direct answers. My final result with Eid was, sizewise, better than he predicted, and better than what the other surgeon showed me. Also, I doubt anyone will "guarantee" anything, except perhaps to do the best they know how.
22cm Coloplast Titan OTR implanted Feb 2012 by Dr Francois Eid in NYC.
Initial implant experience here: viewtopic.php?f=6&t=1308
Initial implant experience here: viewtopic.php?f=6&t=1308
- Bionic_by_AMS
- Posts: 574
- Joined: Wed Apr 04, 2012 2:59 pm
- Location: NJ
Re: Looking for a Great Surgeon In the NorthEast
Hawkman wrote:While bedside manner and a sense of humor are great, they are icing on the cake to me.
Exactly ... I was in the Hospital 3 hrs., saw the surgeon once after for about 2 min. ... then went home ... so what bedside manner was needed?
The reduction from prostatectomy/Peyronies Disease then again from a possible 1" plus implant loss is a significant body image issue.
I certainly understand your concerns ... what size did you get from the above "Rule-of-thumb" method?
Measuring yourself after VED and a ring is not an accurate measurement ... for comparing to what you'll get from an Implant. You like me are fighting a losing battle ... since you already have 3 strikes against you ... 1) Prostatectomy - 2) Peyronies Disease - 3) Blood flow issues. The methods you are using now will last for a while, but will eventually begin to fail ... so what options do you have? I certainly would not recommend Injections, since you already have Peyronies. A consultation with a good surgeon may give you the assurance you are looking for ...
FYI: I did not lose any size from getting an Implant: http://www.franktalk.org/phpBB3/viewtopic.php?f=6&t=1709
rlm1818: my surgeon trained under Dr. Eid ... and with great results!
Robotic Prostrate surgery - Dec. 2011 - AMS 700 LGX Implant - 21 cm/3 cm RTE - June 2012
Re: Looking for a Great Surgeon In the NorthEast
Anyone here have surgery from http://www.garber-online.com/ and care to share either publicly or privately?
Prostatectomy 2004-Bimix caused Peyronies-Viagra had little effect. Active sex life with wife of 50 yrs- been dependent on a VED for 10 yrs. 22cm Titan w/Dr. Eid Aug 7th See my Implant Journal -> http://www.peyroniesforum.net/index.php/board,56.0.html
Re: Looking for a Great Surgeon In the NorthEast
I suggest you enter "Garber" in the search function for the implant forum. I think you will find a couple of his patients. You could also try the same thing on the Yahoo Penile Implant forum.
22cm Coloplast Titan OTR implanted Feb 2012 by Dr Francois Eid in NYC.
Initial implant experience here: viewtopic.php?f=6&t=1308
Initial implant experience here: viewtopic.php?f=6&t=1308
Re: Looking for a Great Surgeon In the NorthEast
Andrew Kramer, U of MD Medical Center Baltimore - excellent surgeon, has done many hundreds of implants, and always remains engaged and available to patients. I'm still in touch from time to time 4+ years post-implant.
Dave, 80, Maryland - Implant (Titan) 2008 by Dr. Andrew Kramer (failed Sept 2020) - never used due to a stroke that, among other things, ended my sex life.
Life is not the way it's supposed to be, it's the way it is.
Life is not the way it's supposed to be, it's the way it is.
Re: Looking for a Great Surgeon In the NorthEast - Baltimore
I would recommend my urologist without hesitation, Dr. Marc Siegelbaum (with Chesapeake Urology Associates). He did my implant, preceded by a prostatectomy, then a vasectomy a few years earlier.
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