Sigh, this sucks.....

[jLW1964]

Had my wife come with me today to my appointment, she learned how to inject so no more issues there. The Cavrject or whatevver it is called didn't work and he increased it to 20 not sure if it is ml or what, just know it filled the entire syringe. Same as always, just gets rounder, not harder at all. The pharmicist we found was very nice and did say that he didn't want to step on stones but we were paying quite bit of money $65 for 5 uses and Trimex is a lot cheaper usually becuase you can use a smaller amount. Everything I have read on Trimex seems to be what I want! I just can't seem to get my Uro to prescribe it as it is no FDA approvd for ED yet. So after a few appointmnts getting shot up in his office and then again tonight, nothin. Just a fat swollen junior that is not hard at all.
The pharmicist again without stepping on feet he said lol I have to laugh at that because I know he wanted to help but did not want to step on my current uro's toes, well he gave me a name of another and I'm gong to call him in the morning. This current uro said to try it 7-8 times then we would go fromthere to a higher dosage or a differnt mix of the same meds. Uggggggggggggggggg
I tried to go in chat, does anyone ever go in there???????????

[JimStars]

JLW,

That has to be really disappointing when you were all up for the big one .. and the big one didn't go up.

One thing I would suggest is to become more familiar with what is going on with your whole shooting experience. ED shots are not like any other prescription where you just blindly take pill or shoot your insulin and that is that. So, find out exactly what you are taking - Caverject system or other -- and at what strength the mixture is (it comes in different strengths 10mcg, 20mcg/ml .. maybe even more). Also get familiar with the whole system and the measurements being used so you can intelligently talk about what you have done so far when you go to the next Uro, if ever. Write everything down or even have the Doc write it down (clearly). He will appreciate that you are actively trying to get it all right I am sure.

With ED Injections you just cannot be a passive patient who does not know what you are doing -- since the consequences of a wrong move can be dangerous.

Lots of good reading on this Injections forum, although lots of fluff exists between the good stuff too so be prepared to read a lot.

keeo on trying ...

J

[jLW1964]

I just checked it was 20 mcg/ml going to all the other Uro this morning......................

[jLW1964]

With a 100 unit dosage last night, the doctor called it 20, the Ultra Comfort 1 ccsyringe was full to the top............................

[JimStars]

JLW,

Man o man ... with a 100u (1 ml) of liquid, you would think that alone would be enough to inflate lazy junior!!!

Just kidding...

I think with Caverject and Edex systems the Uro often refers to the amount injected by the amount of PGE-1 (Alprostadil) based on the amount per 1 ml. So if you had a 20mcg/ml strength he might refer to it as a 20mcg injection rather than the actual liqud amount. Some guys don't need the whole 1 ml and will siphon off the remaining into separate syringes -- which makes the breathtakingly high $65 a shot a litlle more easy to take when divided up over a number of shots). But sounds like you are not a Good Responder if even 1ml is not doing it for you.

Also the 1ml is not the important factor it is the 20mcg of PGE-1 contained in it that is the important amount.
In Trimix it has 3 ingredients so no one refers to the shot amount by the amount of PGE-1 in the shot -- just the liquid amount.

Just another level of confusion added to the whole measurement mix.

Hope you have more luck with the next shot (or will he bump you to a 40mcg/ml version??).
Some docs even have their own bottle of plain Alprostadil in liquid form and will use that to figure out what strength Caverject system to give you -- since those are so expensive to be just wasting on experiments. Could it be your doc is using that? You can easily tell because the Caverject system is a ridiculously complicated affair whereas if your doc is just using a bottle of Alprostadil it is simply extracting some into a syringe and GO.

J

[jLW1964]

Thanks for the input. I goto another Uro Friday. Hopefully he will prescribe Trimax. The Caverject was painful. It made ,me thicker. I felt like I was going to burst. I need to be able to grow the other diresction. I went to this Uro for ED. They want to test my bladder and do procedures that have nothing to do with ED.

[tankerman]

it might be the way you are injecting,,, you would keep trying Trimix Edex and Caverject they do work and im sure with time you will get the desired effect,,, good luck friend and keep us all posted.

[shipper222001]

Trimix made he thicker too. My wife loved it. Most women rather have thickness over length

[dtwarren1942]

Thanks for the input. They want to test my bladder and do procedures that have nothing to do with ED.

Seems to be a way for the Uro to bill the insurance carrier a higher amount. I always have a bladder test taken every time I have an appointment. When I asked the nurse why I needed my bladder tested, she said the doc has all of his patients tested as a precautionary measure. After Mrdicare and secondary insurance, my out of pocket cost is $5.75 so I never complained.

[ontopher469]

I have little patience with physicians, whether they are family practitioners or urologists. Personally, I have little respect for any physician until he/she proves otherwise. Their primary concern is not about you, it’s all about how fast their front door rotates and they generate billings. Most physicians know very little about the drugs they prescribe, only what pharmaceutical salesmen tell them and what perks the salesmen offer.

If your physician is NOT responsive to what medication you want, GO elsewhere. It’s your body. You decide what medication you want to use. Unless your insurance company or the VA is paying the bill, do not use Edex (alprostadil) or Caverject (alprostadil). Both are very expensive. Use Trimix instead.

I personally have used both of Edex and Caverject for about 15 years. Both were supplied to me by the VA and both worked well. I have been on FT for about 2 years and I’d estimate that about 90% of the folks here, who inject, use Trimix. These people are mostly very satisfied with Trimix. So, if the VA or an insurance company are not supplying your meds, TELL your physician to write your Rx for Trimix. If he gives you double talk, WALK! Urologists are a dime a dozen.