Implant + TEP procedure Journal - 34yr old Australian

[frwmw1]

Remember that pain can be a sign of healing. The swelling should be looked at.

[aussiePeyronies]

Thanks for the encouragement guys, I read every reply and appreciate the support.

Update day 4 weeks 4 days

A lot of the swelling has gone down. I am now getting some pain along the shaft and in the scrotum, I am not sure what this is, I am just assuming it's my body adjusting to the device. I am also inflated quite a bit still. I also feel burning feeling on the glans, I am guessing this is the glans being used to being circumsized.

As you can see in the pic, bot right side, the dent is more pronounced now that the swelling has gone down. This is causing the slant to the right. I am expecting this will improve with cycling.

I also have a stitch which has not dissolved, anyone know if this is common almost 5 weeks post-surgery?

J

[aussiePeyronies]

Update day 33

I have been getting pain in the shaft, glans and scrotum lately. It is more prominent after using the bathroom. It's pretty bad and makes it difficult to walk around or do anything as I am also still inflated.

Another dent has showed up, although it's completely insignificant in comparison to how it use to be. I notice that there is pain in this exact area where the dent is. I wish I knew what's going on. Just leaving it for now.

Appt. on thursday with the Doctor to get deflated and hopefully start cycling.

J

[aussiePeyronies]

Update 5 weeks

I had an incident where I pushed a little hard when going to the bathroom yesterday. I had some pain a while after, it was pretty bad. Anyway, this morning I was fine, I woke up, moved around a bit, next thing you know the pain is back. The pain was throughout my groin area, shaft, glans, scrotum, upper thighs, perineum. I was also leaking fluid drops out of my urethra (this really worried me). After a long conversation with a doctor he eventually established that I caused inflammation after going to the bathroom. He explained that the fluid is prostatic tubal discretion (I may have got the wording wrong), and there is no infection. I was then prescribed a strong anti-inflammatory and some pain killers, I am okay now.

What's worrying me, is that I have been inflated about 70-80% since surgery (5weeks). I am wondering if there is a risk of auto-inflation (the reservoir not healing with the full amount of saline etc). Big thanks for Pfract for the support and bringing this to my attention (we talk over skype). I told the nurse this today and she just dismissed it. I will have to see what the doc says on Thursday, I think they will just dismiss it until an actually issue arises.

Would anyone know, would the fact that the titan one touch has a lock out valve prevent auto inflation?

Other than that, I would just like to add that, my whole life, ever since I was a kid, I use to enjoy sleeping on my stomach. Ever since peyronies about 5 years ago, I stopped sleeping on my stomach as it would aggravate my condition. I started sleeping on my sides only to prevent any further injury from nocturnal erections. Even in my sleep peyronies would affect me. I am really looking forward to being able to sleep in peace, without having to worry about nocturnal awkward positioned erection erections causing further damage. I am especially looking forward to being able to sleep on my stomach again after 5 years!

I have included a pic which shows the dent a bit more clearly, you can see it's causing the penis to slant to the side. I am hopeful that with cycling this will either fill out or will not cause any issues. The other issue is, if you look at how the skin is swollen under the glans where I have been circumsized, I really don't like the look, it almost looks a bit like large genital warts. Hoping this subsides.

Appreciate any feedback.

J

[sswinsfba]

Would anyone know, would the fact that the titan one touch has a lock out valve prevent auto inflation?

There is a "lock out" valve on the Titan pump that prevents saline from flowing back into the cylinders after deflation but one of the things that worried me after I began cycling was the fact that some saline would always flow back into the cylinders, which would inflate them to about 20% after deflation. My doc said this was normal and not to worry about it anymore. So, I don't.

If you're worried that your implant will auto inflate because you prefer sleeping on your stomach, don't worry about that either. Asked my doc about that too and he said not to worry about that because, the way the pump is designed, positive pressure from the pump bulb is required to inflate the cylinders. Any pressure on the reservoir from laying on your stomach (or on your side, in my case) will be insufficient to cause that to happen.

[aussiePeyronies]

Would anyone know, would the fact that the titan one touch has a lock out valve prevent auto inflation?

There is a "lock out" valve on the Titan pump that prevents saline from flowing back into the cylinders after deflation but one of the things that worried me after I began cycling was the fact that some saline would always flow back into the cylinders, which would inflate them to about 20% after deflation. My doc said this was normal and not to worry about it anymore. So, I don't.

If you're worried that your implant will auto inflate because you prefer sleeping on your stomach, don't worry about that either. Asked my doc about that too and he said not to worry about that because, the way the pump is designed, positive pressure from the pump bulb is required to inflate the cylinders. Any pressure on the reservoir from laying on your stomach (or on your side, in my case) will be insufficient to cause that to happen.

Thanks for your response. What I am actually worried about, is the fact that I have been so inflated for 5 weeks, the reservoir has not been healing with the full amount of saline in it. So, I am worried that once I deflate, the reservoir will not be able to capacitate the full amount of saline and keep pushing some back onto the penis. Does that make sense?

Appreciate your support.

[aussiePeyronies]

Guys, I appreciate all your encouraging words, literally been in a hotel room, interstate for 5 weeks, inflated, peeing in a bottle, on my own. Your messages really give me encouragement and reassure me I am not alone. Thank you.

Update 5 weeks 1 day

I have quite an interesting update today. Last night I took some painkillers and finally got tired of this erection. I have been inflated the same since surgery 5 weeks ago, was suppose to be partially deflated 2-3 weeks ago but never happened due to swelling and my doctor being on holiday. The TEP procedure I had done requires 4-6 weeks of inflation.

I tried to find the deflate button, I just could not, no matter what I tried. I found the keychain (thanks to Pfract for making me realise that this keychain was actually with my aftercare package) and practiced but just could not find the valve and groove. At least when I thought I had, I squeezed, nothing happened. I squeezed and pressed my penis, nothing happened. I thought maybe if I pull down on the pump it will help, I pressed the pump, it was hard like a marble, I pressed it twice thinking it would do nothing, my penis inflated a bit!!! Lol.

Now after two minor pumps, there is good news and bad news.

The good new is that girth seems to have really improved, pic attached. Look at the top view and side view pics and you can definitely compare it to the pics in the above posts, the girth has improved just in two pumps which is great! It is now more stable and less wobbly too!

The bad news is that firstly, there's a dent on the left side which I have circled, there seem to be more slight dents popping up. These are definitely not significant and I don't think they would effect sex in any way, I also think they may resolve after cycling. Secondly, now this part worries me a bit, the penis is now significantly flatter and oval shaped. I hold it in my hand and it feels like I am holding something wide and flat? I love the extra girth but it is very flat n oval. I am wondering how this will effect women for sex, most dildos etc are all shaped round? Can anyone advise on whether the penis becomes rounder over time, or with natural engorgement, or how an oval shaped penis affects sex?

What I did next was went into the shower and sort of touched myself to see how the sensitivity was. The penis was significantly less sensitive than pre-surgery. However, this may be expected as I had the T.E.P procedure which requires nerve healing (may take 6-9 months). I was also circumsiezd. I noticed that the part behind the glans (frenulum I think) is rather numb, this use to be the most sensitive part of my penis before when I was uncircmsized. Is anyone able to comment on whether this sensitivity here may return or is this just part of a circumsizion?

If anyone is able to give any tips on deflating, I would really appreciate it. I have tried everything, when I feel like I locate the groove and button, I squeeze but nothing happens, I squeeze then squeeze the penis too and nothing happens. It started to get painful so I stopped.

Doctors appointment tomorrow, looking forward to having this thing deflated.

Appreciate any feedback from you guys. The support is reassuring.

J

[sswinsfba]

What I am actually worried about, is the fact that I have been so inflated for 5 weeks, the reservoir has not been healing with the full amount of saline in it.

So, I am worried that once I deflate, the reservoir will not be able to capacitate the full amount of saline and keep pushing some back onto the penis. Does that make sense? Appreciate your support.

I'm sure your doc used a chart produced by Coloplast to determine the amount of saline necessary to place in the reservoir in order to fully nflate your implant.

The reservoir is brand new. It's made out of plastic (or some other synthentic material) designed contract and expand to hold the saline in the system while your implant is inflated or deflated.

So, I really don't think you have anything to worry about just because most of the saline has been in the cylinders and not in the reservoir while your implant has been inflated during the past 5 weeks.

[aussiePeyronies]

What I am actually worried about, is the fact that I have been so inflated for 5 weeks, the reservoir has not been healing with the full amount of saline in it.

So, I am worried that once I deflate, the reservoir will not be able to capacitate the full amount of saline and keep pushing some back onto the penis. Does that make sense? Appreciate your support.

I'm sure your doc used a chart produced by Coloplast to determine the amount of saline necessary to place in the reservoir in order to fully nflate your implant.

The reservoir is brand new. It's made out of plastic (or some other synthentic material) designed contract and expand to hold the saline in the system while your implant is inflated or deflated.

So, I really don't think you have anything to worry about just because most of the saline has been in the cylinders and not in the reservoir while your implant has been inflated during the past 5 weeks.

This is a good point you raise man. I appreciate it. I was talking to another member who advised that the inflated healing could change the way the reservoir heals and effect auto-inflation (which is a risk in a certain percentage of cases), but what you said makes a lot of sense too. Thanks.

[aussiePeyronies]

Have posted a before and after, the difference is quite remarkable. The amount of narowing on my peyronies penis was just crazy. You can clearly see how that's been fixed and the girth I have now, I am confused if it will actually be this girthy or if it's just swelling.

Looking at that after pic, I feel like a porn star HAHA!.

Either way, definitely a big improvement, has me very happy and hopeful.

Wishing the same for any of you's still suffering.

J