Tomorrow is my day! 13th Feb UCLH (London) - Surgery

The final frontier. Deciding when, if and how.
Never_Enough
Posts: 176
Joined: Fri Nov 24, 2023 7:54 am

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby Never_Enough » Tue Feb 27, 2024 2:50 pm

Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it
38 m UK

Psychogenic ED since forever fewer problems being fully erect alone.
2 kids, 3rd on the way. Long term partner.
Chronic pelvic pain pudendal neuralgia and muscle tightness in late 2023 onwards making ED worse.
Cialis 5 mg daily and 15 mg as prn

jasejuk
Posts: 106
Joined: Thu Oct 20, 2022 1:45 pm

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby jasejuk » Tue Feb 27, 2024 3:29 pm

Never_Enough wrote:
Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it



Food was Meh (that's NHS)

The pre assessment was very thorough.

After the pre-op I trusted to put everything in thier hands.

I've got a dick that I could have better sex with while deflated than pre-op on piills etc. so no complaints.

Had two guys on my ward that had their prostates removed and there was me with a new dick. It was difficult to not feel truly blessed and grateful.

One thing to note is you don't leave that hospital until everything is 100%.

I'm looking forward to seeing the staff when I go back 7th March to start cycling.

Not sure about St Peters as I have never been.
Age 50. ED since 25 yrs old. Used pills etc. Last 10 years, everything, including injections --did not work. Doppler test diagnosed VL. Implanted Coloplast Titan 22cm UK NHS ( --13/02/2024 Coloplast with Dr Win Gan Lee -- UCLH London UK)

jasejuk
Posts: 106
Joined: Thu Oct 20, 2022 1:45 pm

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby jasejuk » Tue Feb 27, 2024 3:41 pm

Never_Enough wrote:I have a consultation with Ralph in 2 weeks to see whether I need a test for VL and to induct me with invicorp. I trust either him or his understudy that did your operation are top of their game in this country?

How did you fare with length and girth.

Could you have sex at all prior to this?

Thanks.



Yes, as far as I know, they are top surgeons in the UK for Implants, reconstructions, and all else that can fix a dick. They also train others in Europe, or at least I know Dr Raplh does.

I've not had it fully inflated yet, but when it was semi-inflated, it looked good, and it looked good when it deflated. As others will tell you in here don't think about the size thing until some time after cycling (I did just that, but can also see he is going to be fine, more than fine).

If you see my signature, it mentions I did all the usual (pills, etc), and if you read my NHS story that gives some more info. One occasion I used the pump, and injection and a pill, and still managed to lose my erection.

I have a feeling that 25 years of ED has ended, and by the time it came to the operation, I was more than 100% committed.
Age 50. ED since 25 yrs old. Used pills etc. Last 10 years, everything, including injections --did not work. Doppler test diagnosed VL. Implanted Coloplast Titan 22cm UK NHS ( --13/02/2024 Coloplast with Dr Win Gan Lee -- UCLH London UK)

jasejuk
Posts: 106
Joined: Thu Oct 20, 2022 1:45 pm

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby jasejuk » Tue Feb 27, 2024 3:47 pm

Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


Im not sure as I only had a VED to compare size. I have also not had it fully inflated yet.

What I have now, though, looks very good. Im more than pleased. It's a bit big to sort out in my pants without inflating as it is, so Im guessing my dick size is of no concern.

More will be revealed when I start cycling and after a period of cycling.

I used a VED for 2 years prior to the operation, and I reckon this might have helped.
Age 50. ED since 25 yrs old. Used pills etc. Last 10 years, everything, including injections --did not work. Doppler test diagnosed VL. Implanted Coloplast Titan 22cm UK NHS ( --13/02/2024 Coloplast with Dr Win Gan Lee -- UCLH London UK)

Ruktitan
Posts: 212
Joined: Thu Nov 16, 2017 2:51 pm
Location: Uk

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby Ruktitan » Tue Feb 27, 2024 6:59 pm

Never_Enough wrote:
Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it


No. Uclh screwed my implant twice massively undersizing it. Supposedly best doctors in Europe. Terrible service. Had to pay to see rhe same surgeons privately for them to admit something was wrong then got referred back to uclh. Dr ralph did my latest implant which I was somewhat happy with. Still slightly shorter than where the glans is. But it was usable. However it has just failed and I'm scared of losing size or another surgeon not sizing correctly again.
29 years old. Suffered with ED since 17. No known cause. First Implanted date 23/3/2018. Cylinders way too short and revised by different surgeon 2019. 22cm titan.
Cylinders still short and now pump is upside down and protruding. Awaiting 3rd revision

Never_Enough
Posts: 176
Joined: Fri Nov 24, 2023 7:54 am

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby Never_Enough » Tue Feb 27, 2024 7:11 pm

Ruktitan wrote:
Never_Enough wrote:
Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it


No. Uclh screwed my implant twice massively undersizing it. Supposedly best doctors in Europe. Terrible service. Had to pay to see rhe same surgeons privately for them to admit something was wrong then got referred back to uclh. Dr ralph did my latest implant which I was somewhat happy with. Still slightly shorter than where the glans is. But it was usable. However it has just failed and I'm scared of losing size or another surgeon not sizing correctly again.


Who did your first implant, was it one of Dr Ralph's guys? Before implant you mention your ED had no known cause. How bad was it, could you have sex at all?

I'm trying to figure how bad younger guys Ed is before thry go for implants given my reasons for ED.

Thanks

Thanks
38 m UK

Psychogenic ED since forever fewer problems being fully erect alone.
2 kids, 3rd on the way. Long term partner.
Chronic pelvic pain pudendal neuralgia and muscle tightness in late 2023 onwards making ED worse.
Cialis 5 mg daily and 15 mg as prn

Asecondtobreak2
Posts: 8
Joined: Sun Jan 28, 2024 9:29 am

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby Asecondtobreak2 » Wed Feb 28, 2024 3:37 am

jasejuk wrote:
Never_Enough wrote:
Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it



Food was Meh (that's NHS)

The pre assessment was very thorough.

After the pre-op I trusted to put everything in thier hands.

I've got a dick that I could have better sex with while deflated than pre-op on piills etc. so no complaints.

Had two guys on my ward that had their prostates removed and there was me with a new dick. It was difficult to not feel truly blessed and grateful.

One thing to note is you don't leave that hospital until everything is 100%.

I'm looking forward to seeing the staff when I go back 7th March to start cycling.

Not sure about St Peters as I have never been.


What did the team at UCLH mention reference revisions?

If you have a problem with the implant can you reach out to them directly? Or is it a case of having to be referred through GPs and wait months.

jasejuk
Posts: 106
Joined: Thu Oct 20, 2022 1:45 pm

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby jasejuk » Wed Feb 28, 2024 4:06 am

Asecondtobreak2 wrote:
jasejuk wrote:
What did the team at UCLH mention reference revisions?

If you have a problem with the implant can you reach out to them directly? Or is it a case of having to be referred through GPs and wait months.


For the first 12 months we can deal directly with the UCLH. After 12 months we have to have our GP refer us back.

I guess that covers any issues that could potentially lead to a revision.

I would like to eventually save the money so if I needed a revision I would go straight to Dr Ralph and Dr Lee and get it done ASAP privately.
Age 50. ED since 25 yrs old. Used pills etc. Last 10 years, everything, including injections --did not work. Doppler test diagnosed VL. Implanted Coloplast Titan 22cm UK NHS ( --13/02/2024 Coloplast with Dr Win Gan Lee -- UCLH London UK)

jasejuk
Posts: 106
Joined: Thu Oct 20, 2022 1:45 pm

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby jasejuk » Wed Feb 28, 2024 4:11 am

Ruktitan wrote:
Never_Enough wrote:
Ruktitan wrote:I would also be keen to know how found the difference from pre to post op size? I've had terrible experiences at uclh and due to be back in again so looking for a uro who will actually care about cosmetics.


What was your experience... Uclh is not the same as St Peters andrology is it


No. Uclh screwed my implant twice massively undersizing it. Supposedly best doctors in Europe. Terrible service. Had to pay to see rhe same surgeons privately for them to admit something was wrong then got referred back to uclh. Dr ralph did my latest implant which I was somewhat happy with. Still slightly shorter than where the glans is. But it was usable. However it has just failed and I'm scared of losing size or another surgeon not sizing correctly again.


Blimey, that is unfortunate. Sorry to hear you've had a rough ride with it all.

Who did your first implant? Which surgeon?
Age 50. ED since 25 yrs old. Used pills etc. Last 10 years, everything, including injections --did not work. Doppler test diagnosed VL. Implanted Coloplast Titan 22cm UK NHS ( --13/02/2024 Coloplast with Dr Win Gan Lee -- UCLH London UK)

Asecondtobreak2
Posts: 8
Joined: Sun Jan 28, 2024 9:29 am

Re: Tomorrow is my day! 13th Feb UCLH (London) - Surgery

Postby Asecondtobreak2 » Wed Feb 28, 2024 4:17 am

jasejuk wrote:
Asecondtobreak2 wrote:
jasejuk wrote:
What did the team at UCLH mention reference revisions?

If you have a problem with the implant can you reach out to them directly? Or is it a case of having to be referred through GPs and wait months.


For the first 12 months we can deal directly with the UCLH. After 12 months we have to have our GP refer us back.

I guess that covers any issues that could potentially lead to a revision.

I would like to eventually save the money so if I needed a revision I would go straight to Dr Ralph and Dr Lee and get it done ASAP privately.


Thank you for the swift reply! That sounds reasonable. Do you know the approximate cost of an implant surgery when done privately through Dr.Ralph and his team?

I've asked my GP to refer me to UCLH as of yesterday. Could you shed any light on approximate timeline for being seen and implanted?

I'm seriously considering finance and going privately. I am worried about subsequent costs of revisions etc if not done through the NHS.


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