Inflatable vs Malleable - My Experience with Both & Infection

The final frontier. Deciding when, if and how.
Fidelio
Posts: 41
Joined: Sun Jul 14, 2024 8:31 pm

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby Fidelio » Mon Aug 05, 2024 5:51 pm

niceguy1 wrote:The stretching routine was to use the RestoreX for 10 minutes. Take a break for a few minutes. Then use the vaccum for 10 minutes. Take a break for a few minutes. Then repeat alternating between the two devices. You have to take breaks to avoid the risk of "glans necrosis," which is a truly terrifying term that Dr. Eid used. Basically i just sat in bed most of the day alternating between devices throughout the day until I went to sleep, then woke up and repeated this awful process for 3 months. But it actually worked and I did not lose any length. Even Dr. Eid was surprised by this when he examined me 3 months later.


Thank you for the answer. I can see how dr Eid could be surprised, afterall you sir avoided A LOT of length loss. We're talking the mean of around 4 cms in these extreme infection cases when patient has to have implant removed and stay completely explanted. It's not everyday somebody has balls to combat what's said to be 'inevitable' in literature, and you just did it. Hence a 'hero' patch.
I've read a lot of infection stories, and your case is amongst the most severe. Surely makes one reconsider going with local surgeon so to have this possibility to reach him shortly after suspicious symptoms arise.
28 y/o, Poland, ED after heavy metal poisoning
Corporal fibrosis after ED - Traction + VED to regain size - seeing great results
Lost 1"L 0.5"G. Regained all length and 0.2"G.
Making money to afford implant, meanwhile trying everything else

GJourney
Posts: 7
Joined: Sat Apr 20, 2024 6:23 pm

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby GJourney » Mon Aug 05, 2024 6:40 pm

Great post!
Thank you!
GJourney
Considering Trimix or implant. Prostatectomy in 2022 for cancer.

wilsonmill
Posts: 243
Joined: Mon Mar 11, 2019 9:50 am
Location: Raleigh NC

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby wilsonmill » Mon Aug 05, 2024 8:14 pm

Wow, what a experience, glad you got to the hospital, just had a revision and infection was my biggest concern, that's why I stayed local because of the hospitals in my area, I do understand why folks travel especially if they do not trust what's local. Good luck with the malleable and hopefully infection free.
Age 64, type 1 diabetic, Married 20+ years, Titan implant 23 cm 27Feb2019, Duke Medical Hospital, Dr Lentz, failed March of 2024, revision 25Jun24 AMS700 LGX 18cm 5rte's Dr Andrew Chang associated urology Raleigh NC, Rex Hospital

niceguy1
Posts: 8
Joined: Sat Aug 03, 2024 5:26 pm

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby niceguy1 » Mon Aug 05, 2024 10:41 pm

LastHope wrote:
Genesis is a great device. Does Dr. Eid also implant the Rigicon Rigi10? It claims to have the highest axial rigidity of 6.6 lbs among all FDA-approved malleable implants in the US market. I would like to know his rationale for selecting Genesis for you.



The conversation I had with Dr. Eid about the brand of malleable implant was very brief. I asked what brand we should go with, he said "Genesis is the best because it has a slick exterior coating" that allows him to slide it along the side without damaging the cavernosa tissue. He also said it "has the best memory," referring to the ability to bend and conceal it. I said ok lets do it and that was it.

It's possible that if you insisted he would implant a different brand, but the feel of the conversation was that he had a strong preference, so if you go with Dr. Eid expect that you're getting a Genesis. I was neutral towards all of the brands and happy with his recommendation.
Dec 2023 - Titan inflatable - Dr. Eid
April 2024 - Infection
July 2024 - Genesis malleable - Dr. Eid

LastHope
Posts: 723
Joined: Sun Feb 18, 2024 1:26 am

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby LastHope » Mon Aug 05, 2024 11:49 pm

Thank you for sharing Dr. Eid's valuable insights. It's one thing to repeat marketing material (plenty of YouTube content), but it's another to speak from experience with over 8,000+ surgeries. When you don't have comparative research data from an independent entity, the words of an experienced surgeon are the ones to trust.
Good decision!

Mark1974
Posts: 369
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby Mark1974 » Tue Aug 06, 2024 11:11 am

LastHope wrote:Thank you for sharing Dr. Eid's valuable insights. It's one thing to repeat marketing material (plenty of YouTube content), but it's another to speak from experience with over 8,000+ surgeries. When you don't have comparative research data from an independent entity, the words of an experienced surgeon are the ones to trust.
Good decision!

Do you think it is in any way possible that Eid's preference for the Genesis may be linked to the loss of axial rigidity in malleable implants?

I know he is the leading world authority and he attributes it to biological factors, but I have dug deep into the archives here and have read other accounts of men losing axial rigidity with the Coloplast Genesis.

I think the Tactra was built like it was to address this very issue
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is sexual health expert Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. I also have mild BPH

niceguy1
Posts: 8
Joined: Sat Aug 03, 2024 5:26 pm

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby niceguy1 » Tue Aug 06, 2024 1:26 pm

Mark1974 wrote:
LastHope wrote:Thank you for sharing Dr. Eid's valuable insights. It's one thing to repeat marketing material (plenty of YouTube content), but it's another to speak from experience with over 8,000+ surgeries. When you don't have comparative research data from an independent entity, the words of an experienced surgeon are the ones to trust.
Good decision!

Do you think it is in any way possible that Eid's preference for the Genesis may be linked to the loss of axial rigidity in malleable implants?

I know he is the leading world authority and he attributes it to biological factors, but I have dug deep into the archives here and have read other accounts of men losing axial rigidity with the Coloplast Genesis.

I think the Tactra was built like it was to address this very issue


I'm not sure because he did not suggest the Tactra as an option. He told me that with any malleable over the years the skin around the implant would expand and it would become "wobbly" at the base, so eventually you will need to lift it with your hand to put it in.
Dec 2023 - Titan inflatable - Dr. Eid
April 2024 - Infection
July 2024 - Genesis malleable - Dr. Eid

LastHope
Posts: 723
Joined: Sun Feb 18, 2024 1:26 am

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby LastHope » Tue Aug 06, 2024 3:07 pm

I was unable to find manufacturer's lab-measured device axial rigidity for Genesis. However, there is a research paper with data from implanted patients, which I believe is realistic compared to any lab measurements.

Mean axial rigidity during follow-up visits from 3 months up to 5 years:

- Titan Classic: 1068 g
- AMS CX: 985 g
- Titan OTR: 953 g
- Genesis: 857 g

The Genesis is 22% lower than the Classic Titan and only 11% lower than the Titan OTR.

Penile axial rigidity greater than 800 grams is considered excellent for vaginal penetration.

It would be nice to see controlled study data after 10 years for Genesis and the competitors, Tactra and Rigi10!

Source:
https://pubmed.ncbi.nlm.nih.gov/24085236/

Al Ansari A, Talib RA, Canguven O, Shamsodini A. Axial penile rigidity influences patient and partner satisfaction after penile prosthesis implantation. Arch Ital Urol Androl. 2013 Sep 26;85(3):138-42. doi: 10.4081/aiua.2013.3.138. PMID: 24085236.

easymoney
Posts: 605
Joined: Tue May 09, 2023 10:28 am
Location: West Coast Fl.

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby easymoney » Tue Aug 06, 2024 6:55 pm

Would be nice to find any "honest" information on the mallabble implants that is not biased in one form or the other. Dr's are like mechanics each one has a brand favorite and may not be based on "real" life or patients experiences. I have found my surgeon to be "removed" from me as a patient, meaning he just sees my penis as something to "fix". Does not appear to be concerned with the person connected to that penis, or realizing that that person has emotions or feelings. Many others who have had different surgeries say their surgeons appear to act the same way. Perhaps it is the way they are taught in medical school. My daughter is a dr. but she is never willing to give any opinions when I ask her. She did say urologists in the hospital are the hardest ones to get to see a patient for a consult.

Rufian
Posts: 196
Joined: Sun Nov 20, 2022 10:28 pm

Re: Inflatable vs Malleable - My Experience with Both & Infection

Postby Rufian » Sun Aug 11, 2024 12:02 am

makes zero sense how out of nowhere with no previous infection or anything, one day you have fever, then the next youre septic where you almost died

sometimes someone may seem health on paper on the surface but genetically something may be wrong


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