Floppy Glands *Warning Picture*

The final frontier. Deciding when, if and how.
newhope
Posts: 200
Joined: Sun Dec 24, 2023 11:20 am

Re: Floppy Glands *Warning Picture*

Postby newhope » Tue Nov 05, 2024 4:47 pm

you are at least 2-3 cm short of implant length

go to see a high volume doctor, and post the name of your doctor so other can avoid him
LGX 18 + 1, 90 cc. 2023/12
Pre-OP VED length: 5.5". Post-OP: 4". At 3 months post-op: 5".
Cycling with a lot of pain for the first 5 months, now improving
If you have a motorcycle or a bike stop using it (ED with motorcycle accident).

Discovernew
Posts: 362
Joined: Sat Jul 08, 2023 5:14 pm

Re: Floppy Glands *Warning Picture*

Postby Discovernew » Tue Nov 05, 2024 6:47 pm

newhope wrote:you are at least 2-3 cm short of implant length

go to see a high volume doctor, and post the name of your doctor so other can avoid him


I agree with this, seems to be the bottomline
Implanted October 11, 2024, Dr Karaman. Infla10 AX 20cm +1cm RTE.
My Implant Journal - Click Here

ED about 14 years. Pills worked for 12 years, later worked 50%. Tried almost everything, nothing worked: Shockwave-Testosterone-PRP-Stem Cells-Botox, Etc

MS_Man
Posts: 53
Joined: Sat Oct 12, 2024 6:35 pm

Re: Floppy Glands *Warning Picture*

Postby MS_Man » Tue Nov 05, 2024 8:20 pm

Sent an email to my consultant today so I'm waiting to hear back from him. I'd love to go out of the country with someone else but it won't be covered by insurance.
MS diagnosed 2020.
Sept 2024: 16+1 cm RTE CXR Boston Scientific AMS 700 implanted

LastHope
Posts: 722
Joined: Sun Feb 18, 2024 1:26 am

Re: Floppy Glands *Warning Picture*

Postby LastHope » Tue Nov 05, 2024 10:38 pm

MS_Man wrote:Sent an email to my consultant today so I'm waiting to hear back from him. I'd love to go out of the country with someone else but it won't be covered by insurance.


Wishing you the best with this. I hope you get a solid solution soon. How long do you usually have to wait to get a surgery date scheduled?

MS_Man
Posts: 53
Joined: Sat Oct 12, 2024 6:35 pm

Re: Floppy Glands *Warning Picture*

Postby MS_Man » Wed Nov 06, 2024 7:20 am

LastHope wrote:
MS_Man wrote:Sent an email to my consultant today so I'm waiting to hear back from him. I'd love to go out of the country with someone else but it won't be covered by insurance.


Wishing you the best with this. I hope you get a solid solution soon. How long do you usually have to wait to get a surgery date scheduled?


Thanks, I waited the last time around 2 months but it will depend on his schedule I suppose and if that's the direction he wants to take. I just want to have everything sorted at this point so I can heal and move on.
MS diagnosed 2020.
Sept 2024: 16+1 cm RTE CXR Boston Scientific AMS 700 implanted

newbie443
Posts: 1930
Joined: Fri Dec 01, 2017 9:41 pm
Location: Sedgwick county, Kansas USA

Re: Floppy Glands *Warning Picture*

Postby newbie443 » Thu Nov 07, 2024 9:16 pm

MS_Man wrote:Sent an email to my consultant today so I'm waiting to hear back from him. I'd love to go out of the country with someone else but it won't be covered by insurance.


The CXR device is the narrow cylinder model. It is used when the doctor cannot dilate the corpora enough to install the regular CX or LGX cylinders. It would seem that not only could your doctor not dilate your corpora but could not size the device correctly also. It is commonly accepted that the first install is the easiest. Or rather that revisions are more difficult. I would check and see if there is another better doctor available to you as the revision will be more difficult. In the US there are doctors that have the skill and would do the extra work to open up the corpora to be able to use the CX or LGX in all but extreme cases. And then then when the narrow cylinder runs its normal life cycle and has to be replace the years of cycling will then permit the use of a regular cylinder replacement.
Injections failed. Implanted 3-21-18 AMS 700 LGX 21 + 1 RTE 100 cc reservoir 6.5" L 5" G Dr. Kramer.

Proximal Perforation Sling Repair 4/13/21 Dr. Broghammer

66 years young.

Will show and tell and talk with others.

Discovernew
Posts: 362
Joined: Sat Jul 08, 2023 5:14 pm

Re: Floppy Glands *Warning Picture*

Postby Discovernew » Fri Nov 08, 2024 2:53 am

newbie443 wrote:
MS_Man wrote:Sent an email to my consultant today so I'm waiting to hear back from him. I'd love to go out of the country with someone else but it won't be covered by insurance.


The CXR device is the narrow cylinder model. It is used when the doctor cannot dilate the corpora enough to install the regular CX or LGX cylinders. It would seem that not only could your doctor not dilate your corpora but could not size the device correctly also. It is commonly accepted that the first install is the easiest. Or rather that revisions are more difficult. I would check and see if there is another better doctor available to you as the revision will be more difficult. In the US there are doctors that have the skill and would do the extra work to open up the corpora to be able to use the CX or LGX in all but extreme cases. And then then when the narrow cylinder runs its normal life cycle and has to be replace the years of cycling will then permit the use of a regular cylinder replacement.


Hey Newbie, i am seeing your signature and see you were implanted by Dr Kramer, i also like watching his surgery videos on youtube. Wanted to ask you. Do you recommend Dr Kramer? Did he do a good job?

Based on your signature it gives the impression that Kramer caused a perforation in your corpora which had to be fixed by another Dr? Let me know if i understood your signature wrong.
Implanted October 11, 2024, Dr Karaman. Infla10 AX 20cm +1cm RTE.
My Implant Journal - Click Here

ED about 14 years. Pills worked for 12 years, later worked 50%. Tried almost everything, nothing worked: Shockwave-Testosterone-PRP-Stem Cells-Botox, Etc

frank66665
Posts: 1463
Joined: Wed Mar 25, 2020 11:18 am

Re: Floppy Glands *Warning Picture*

Postby frank66665 » Sun Nov 10, 2024 1:48 pm

hi MS_Man it doesn't take a new doctor to understand that the tips do not enter the glans, make sure you assert yourself to get a revision, I don't know if it is possible to get justice in your country, it seems that these implantologists are in an iron barrel
56, ED since 2010, pills work but not always and well, trt in progress improved but not so much, myocardial infarction january 2016, new stent september 2016, hypertension, venous on 1/23/23 titan one touch 22, no rte dottor Gabriele Antonini Italia

MS_Man
Posts: 53
Joined: Sat Oct 12, 2024 6:35 pm

Re: Floppy Glands *Warning Picture*

Postby MS_Man » Wed Nov 13, 2024 2:05 pm

So I had my consultation today and I indeed have an issue with the glans. I've been prescribed cream and pellets to help with hardening it and scheduled for a circumcision in January to take pressure off the glans.

I've been told the rods are in as far as they can go and every person is different in relation to how far in they go.

He told me I've already increased slightly in length.

Whats everyone's take on this? Is it a case of it is what it is or is it a case of being undersized?
MS diagnosed 2020.
Sept 2024: 16+1 cm RTE CXR Boston Scientific AMS 700 implanted

newhope
Posts: 200
Joined: Sun Dec 24, 2023 11:20 am

Re: Floppy Glands *Warning Picture*

Postby newhope » Wed Nov 13, 2024 2:52 pm

we were very clear to you: change the doctor
LGX 18 + 1, 90 cc. 2023/12
Pre-OP VED length: 5.5". Post-OP: 4". At 3 months post-op: 5".
Cycling with a lot of pain for the first 5 months, now improving
If you have a motorcycle or a bike stop using it (ED with motorcycle accident).


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