Going On Year 4 With PFS - Seeking Advice

[runaway11]

I am living a similar lifestyle as you at 40. My condition is from pssd though which I feel like has similar ties. I’m doing pills and injections to get by but really considering an implant myself. It’s like I lost the connection to my penis along with low sensation and extremely low arousal. I used to be above average I felt like in the bedroom and now I’m a mere shell of my old self.

Yes, I believe PSSD is very similar to PFS. I feel like the lack of arousal, sensitivity and connection to the penis are just as much of a problem as the lack of function. In my mind, if I can fix the function piece with an implant, I can deal with the lack of sensitivity.

Are the pills and injections working for you?

[Markc2008]

The pills work but its higher doses to work as they obviously work based on arousal. So the pills effectiveness fluctuates. The injections work everytime but it is hard to be sporadic, not fun and even after im finished can take time to go down so they all have down sides. Yeah the sensitivity sucks bur function and arousal is the most important to me. It kills my self esteem and doesnt exaclty help my already flat mood.

[ready2go]

PFS (Post Finasteride Syndrome) myself started @ 25 after discontinuing Propecia.
In my marriage from age 27 till 38 I still could get away sexually without using pills. Not having to use a condom was helping me. But it was not a dime of my sexual performance before PFS.
After marriage things went downhill. Had some encounters and a 1 year relation, but I had to rely on pills.
Then @ age 39/40, thing went gradually worser. Pill became a hit and miss. Tried TRT, and that was a temporary fix. I had for a time good results with intermittent fasting and after that with vitamin D3, but it seems like there is also a temporary uprise and after that the body goes back in homeostase.
Now @ almost 46 I have decide I will go for the implant. I think it's still a decision between two bad things. Having ED or having an artificial object in your penis and scrotum, with the risks, revisions, etc. From what I read here, over the years!, the last choice would give me the most happy life. Don't wanna avoid sexual encounters anymore. And don't wanna visit the Propeciaforum with all the negativity. I have no faith that there will be a cure for PFS in the next 10 years.

Also what helps me with other parts of PFS is living a very healthy life. For me it's quitting most sugar, eating low carb and high fat. 3 times a week a hour, mostly compounds, workout. Focussing on positive things, avoiding negative people.

Good luck with your decision!

hmm ,how about minoxidil ? info i have been able to find says it wont cause ed . but is that true ? At 63 years old I had a 34-year-old girl visit for 2 weeks. at the time i would take some cilalis from india . which they said was 80mg . Mixed with supplements [black cilails] whether or not it was actually 80mg I don't know.
and i took other supplements.
i got some pretty bad heart burn at night but i got good and hard . i also would hold climaxing in order to stay hard . the results was i was doing her daily, more than she could handle , she had asked me why i was always hard at my age and was i taking meds or supplements? i just smiled . when she commentated that i couldnt " cum" I responded ;i can etc etc , then i would cum but hold back cutting it off from a complete orgasm.which is like edging , it leaves me in the mood and ready to go .i didn't mind at all .i was enjoying doing it with her.
now a year later my wife came back and all that seeminly changed .
the supplements and cialis dont have that effect anymore . i suppose its probably age related instead of minoxidal that i use once a day

[Flexwheeler]

PFS (Post Finasteride Syndrome) myself started @ 25 after discontinuing Propecia.
In my marriage from age 27 till 38 I still could get away sexually without using pills. Not having to use a condom was helping me. But it was not a dime of my sexual performance before PFS.
After marriage things went downhill. Had some encounters and a 1 year relation, but I had to rely on pills.
Then @ age 39/40, thing went gradually worser. Pill became a hit and miss. Tried TRT, and that was a temporary fix. I had for a time good results with intermittent fasting and after that with vitamin D3, but it seems like there is also a temporary uprise and after that the body goes back in homeostase.
Now @ almost 46 I have decide I will go for the implant. I think it's still a decision between two bad things. Having ED or having an artificial object in your penis and scrotum, with the risks, revisions, etc. From what I read here, over the years!, the last choice would give me the most happy life. Don't wanna avoid sexual encounters anymore. And don't wanna visit the Propeciaforum with all the negativity. I have no faith that there will be a cure for PFS in the next 10 years.

Also what helps me with other parts of PFS is living a very healthy life. For me it's quitting most sugar, eating low carb and high fat. 3 times a week a hour, mostly compounds, workout. Focussing on positive things, avoiding negative people.

Good luck with your decision!

hmm ,how about minoxidil ? info i have been able to find says it wont cause ed . but is that true ? At 63 years old I had a 34-year-old girl visit for 2 weeks. at the time i would take some cilalis from india . which they said was 80mg . Mixed with supplements [black cilails] whether or not it was actually 80mg I don't know.
and i took other supplements.
i got some pretty bad heart burn at night but i got good and hard . i also would hold climaxing in order to stay hard . the results was i was doing her daily, more than she could handle , she had asked me why i was always hard at my age and was i taking meds or supplements? i just smiled . when she commentated that i couldnt " cum" I responded ;i can etc etc , then i would cum but hold back cutting it off from a complete orgasm.which is like edging , it leaves me in the mood and ready to go .i didn't mind at all .i was enjoying doing it with her.
now a year later my wife came back and all that seeminly changed .
the supplements and cialis dont have that effect anymore . i suppose its probably age related instead of minoxidal that i use once a day

You can have PFS related symptoms with Minoxidil as it's also a 5-ar reductase inhibitor, although it's less strong.

[MarkJack]

Bump.

So did any of you end up getting an implant?

I'm here due to minoxidil (rogaine foam) induced ED. Strongly leaning towards the implant but waiting to finish up all of my consults over the next few weeks (Eid, Clavell, Hakky, Perito)

[fucked0ne]

Your situation is not too dissimilar to mine. Same deal: 41 and otherwise very healthy, no cardiovascular issues and no metabolic disorders. Whereas your situation happened 3 years ago, mine happened 4 years until this past July when I was finally implanted.

My issue was "hard flaccid" (Google it; basically, it's involuntary contraction of the corpora) following a bacterial infection in my genitourinary tract. I had good blood flow, no fibrosis, but for the life of me, could not keep a hard on without constant manual stimulation.

When trying to figure out what the fuck was wrong with me, I did come across many people with PSS and PFS. As far as the issue being at the level of the brain, I believe this makes more sense to PSS. As Finasteride is a DHT blocker, have you had your hormones checked? It may have caused a problem with hormone regulation. Another theory regarding PFS is that it works on the androgen receptors. How do you strengthen androgen receptors? L-carnitine can increase the number of androgen receptors in the body and make them more sensitive to testosterone.

After exhausting everything, I had to go with the implant. I often complain about my pump, but it does give a good erection, so I would prescribe with one caveat: for the thing to work really well, the penis still requires the physiological ability to become engorged (tunica, glans). Do you still have this ability?

[MarkJack]

Alot of men complain that propecia/minoxidil/ssris cause them to lose some length and or girth.

For those that received the implant, did the implant bring you back to your ORIGINAL size, before the medication caused ED and some shrinkage?

[ViaSwiss]

You can read through my story on here or PM me.

I had PFS at 18. Had the same "crash" that you expereinced. ED for 17. years after that. I finally decided on an implant 4 years ago and am so thankful that I did.