Seeking's Pelvic Venograms - Before and AfterOk, so after Razor mentioned he didn't receive prints of all his venograms from the Austrian team, I made sure I got mine.
Here is a venogram taken with the contrast dye before the procedure. I assume the forceps are holding my Deep Dorsal Vein in place. You can see there is alot of blood leakage into my pelvis, I've pointed to the most significant leak with a pen but there are other leak channels to the left also.
Here is the venogram taken after three rounds of valsalva (straining) after the aethoxysclerol was injected. You can see that the pelvic leakage has been significantly reduced. Interestingly, you can still see significant blood outflow to the sides of where the forceps are - I assume/hope these are 'normal' leakage channels which you need to basically stop yourself from having a 24/7 erection (as remember - my penis was flaccid during this procedure). When I have my follow up with Dr. Kuehhas in 4-8 weeks, I will absolutely enquire with him what these leakage channels signify.
If these images do nothing else, they give me a sense of liberation knowing that there were ORGANIC, PHYSICAL causes of my condition and that no urologist can now bullshit me saying it was all in my head. Having a serious condition that is diagnosed is distressing enough, but for nearly 4 years I've had a condition which was undiagnosed - in the last month Dr.Kuehhas' team have both i.) given me a diagnosis and ii.) a treatment. This leaves me with a mixture of emotions - grateful that I've been able to have this treatment, but some bad memories being sat in urologists offices being spoken down to. If this treatment benefits me enough, I will absolutely be writing to the heads of sexual dysfunction in our health service suggesting that they monitor the results of Dr. Herwig's study (as I assume these treatment outcomes will eventually be published) and use this to inform their treatment of ED patients. If nothing else, a venogram of the pelvic area should be taken as a diagnostic measure and not everything riding on a doppler ultrasound.
38 Years Old. HF symptoms since age 23 (tight pelvic floor).
Tried pills, sclerotherapy.
At about 40% function currently but reluctant to wait much longer for an implant.