I had Surgery Oct 8 and regretting it

The final frontier. Deciding when, if and how.
terryneal
Posts: 29
Joined: Thu Sep 29, 2011 12:02 pm

Re: I had Surgery Oct 8 and regretting it

Postby terryneal » Thu Dec 01, 2011 8:06 pm

hard drive wrote:I'm guessing you got this done in Asheville? Me too... I really would like to know the name of your surgeon if possible. Considering it's only 2 months out it really does look normal at this point. Mine pointed to the left and was kind of twisted (ever so slightly also). It stayed that way for many months but got gradually better (very slightly) each couple of months. After about a years worth of serious pumping and working with it, the twist went away, and pumping to absolute maximum gave it back a very slight upward angle.

Now I've had a revision for relocate my pump and the process (part of it anyway) has started all over for me again. EXCEPT that now, when laying on my back, if I pump it up firmly, it points significantly more upward. However, while standing, gravity will pull it back down with a very slight upwards angle.

I do understand your buyers remorse, I'm going through that too right now. It was really bad the first time out of the gate for me, but it seriously was a dramatic improvement at the end of a year. I had a revision just a month ago and it's like starting all over again except that I know it will get much better over time. I fully hope and expect I'll have no complaints (with the implant) a year from now based on my own past experience, but I could be wrong. If I'm not happy with it, I will find someone to fix it and have it done. That's just me...

I doubt you'll be disappointed 6-8 months from now. Just be patient if possible.


In general, every other thing I read says that this procedure will not change the appearance...even another intern notice the bend to the left and asked me if I'd always had it (which I haven't.) I hope you are right about the upward angle however I seem to run out of solution from the pump...I know it will go up a bit further but no more juice! I am sorry you've had to go through surgery again...

I didn't get much beforehand information or after the surgery to get me through the early stages...I'm very disappointed with that. I've already expressed my disappointment and trying to talk to attending but so far no luck. I definitely think a physician/surgeon should have been much more involved and the surgeon assisted by an intern, not having an intern do the entire procedure. My penis didn't start pointing left on its' own.
bionicguy3040

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Dave48003
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Location: Almont, Michigan USA

Re: I had Surgery Oct 8 and regretting it

Postby Dave48003 » Thu Dec 01, 2011 8:48 pm

Sorry you are not happy. A couple of comments based on my experience. I was implanted this year on St. Paddy's day.

First, the first couple of weeks post surgery it is supposed to remain pointing up toward you chin and held against the abdomen to help it go straight and be able to be upward when erect. I never had a point for the sky woody, but maybe 20 or 30 degrees upward from horizontal when extremely hard. The IPP is heavy, when mine is pumped you can feel the extra mass, it tends to pull it downward. I'm straight out, that's it. If I lay on my back, it will point upward and tip toward my chin. It shouldn't make a difference during sex.

The pointing to the left may be part of the same issue, if you didn't keep it pointing up for 2 or 3 weeks. I locate mine to the right to try to make it go straight. I always leaned left, but not severe. I may lean less now than before surgery.

Which side is your resevoir on? Mine is on the right, and there was some swelling there that was the last to subside. That swelling seemed to push me to the left. Is it possible that is the case with you also?

You are less than 2 months post surgery. Give it some time, inflate, position, etc. Things tend to normalize with time. Hopefully you get a very functional penis that gets super wood!

Dave
Charter member of the Brotherhood of Bionic Boners.
69 YO with a venous leak since puberty, made worse by meds & diabetes. Tried pills, a VED, and injections before my AMS 700LGX was implanted 3-17-2011. A life changing event!

terryneal
Posts: 29
Joined: Thu Sep 29, 2011 12:02 pm

Re: I had Surgery Oct 8 and regretting it

Postby terryneal » Fri Dec 02, 2011 11:29 am

Thanks, there's some good hints there. I don't know where my reservoir is or how to tell. I'll try the pointing it up to my chin but no one has ever mentioned doing that....thanks. I used to get horizontal, now I'm not getting more than 20-30% above flacid....it's discouraging but you advice might help.
bionicguy3040

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: I had Surgery Oct 8 and regretting it

Postby hard drive » Fri Dec 02, 2011 5:29 pm

I was given the same instructions about pointing my penis upwards during recovery. When I was sent home, I was inflated and bandaged with my penis taped in an upward position. My penis actually covered my navel. I was also given a jock strap (hate that thing) and told to wear it and point my penis upwards as much as possible.

Once the tips lodged and seated deep into the glans, mine straightened out. Mine was also very pointed like an arrowhead for a long time. Very skinny at the top and way too wide at the base. Makes a rubber roll right off every single time. I found that by pumping with all my might, over and over (several times a day) and keeping it inflated for as long as I could (it does get painful), the tips pushed deep into the glans, the tubing length equalized (initially the left side was shorter), the twist came out of my penis, and it got wider at the top and eliminated the arrowhead effect. For all this to take place, it took nearly a year to happen.

It's a process and no two people have the same healing time, so you kind of need to wait and see before you worry yourself mad. I'm a poor one to give this advice though, and I worry about and panic about everything (I have Generalized Anxiety Disorder) since I retired. I guess I haven't adapted yet.

Seriously, from the looks of your results, I think you'll wind up being happy in the end, but it's hard to see that right now.
harddrive

terryneal
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Joined: Thu Sep 29, 2011 12:02 pm

Re: I had Surgery Oct 8 and regretting it

Postby terryneal » Fri Dec 02, 2011 9:34 pm

Thanks...it's amazing how I read the posts on this site about all the different directions patients are given post-op. Everybody needs to keep in my that my education was on d/c from the hospital, I was given a tiny card with instructions on how to use the Titan...that's it, other than don't do anything until the first follow up 6 weeks later...it was useless also. I wasn't sent home partially inflated, taped upward, nothing.

It's nearly 8 weeks but I'm going to start trying to my penis in as upward position as possible, flacid or pumped. I hope that helps but I'm still going to talk to a doctor about it when they let me talk to them. I've also got some tubing or something directly on the top of my scrotum in front directly under my penis...it bulges out...very weird.

I hope you're right and I'll keep you posted. I'm not bragging but I really had a great looking penis before this...to the point that I would get compliments. Now, well, I feel ruined, but I'll give it time...what choice do I have.

Don't worry about the GAD...I'd worry too, it's normal. Thanks again.
bionicguy3040

terryneal
Posts: 29
Joined: Thu Sep 29, 2011 12:02 pm

Re: I had Surgery Oct 8 and regretting it

Postby terryneal » Sat Dec 03, 2011 10:54 am

Minnesota wrote:What kind of implant do you have?



Titan OTR
bionicguy3040

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: I had Surgery Oct 8 and regretting it

Postby hard drive » Sat Dec 03, 2011 7:40 pm

terryneal wrote: I've also got some tubing or something directly on the top of my scrotum in front directly under my penis...it bulges out...very weird.

I hope you're right and I'll keep you posted. I'm not bragging but I really had a great looking penis before this...to the point that I would get compliments. Now, well, I feel ruined, but I'll give it time...what choice do I have.

Don't worry about the GAD...I'd worry too, it's normal. Thanks again.


I had that tubing problem afterwards too, and it really played havoc with me for a long time. I mean it's like it was a serious obstruction to penetration for me. An actual real live cock blocker. It took almost a full year and it actually kind of disappeared. I now think (and I'll explain why I think this) it's a thick tuft of sutured tissue inside the scrotum. When I got past my psychological issues with this, and just started having sex on a regular basis, it went away pretty fast. I think that the pushing and stretching of the tissues thinned it back out.

Why do I have this notion? Well, I just had a revision about a month ago. The incision is in the same place, and the cylinders weren't disturbed. I once again have this cock blocker tuft of tissue and it rides nearly half-way up my penile shaft and seems to interfere with penetration somewhat. I'm now dealing with (don't laugh) performance anxiety and other associated psychological worries and have moments of (Damn I regret this revision). I've had sex twice since the revision and the wife was very happy. However on the 3rd sexual encounter, she was very unhappy because of pain caused by the tissue thicket and/or tubing. So now I'm hesitant to try again for awhile (performance anxiety I suppose). You see, my wife hasn't been supportive at all since my ED started and she's pretty harsh about it when things aren't PERFECT. It makes me kind of gun-shy and I envy those of you who have supportive partners. ED is hard on relationships period, sorry I forked off of the original topic.

Anyway I'm dealing with that exact issue you describe (again), and since it just magically went away after A LONG period of time, I expect it will do the same again.

The biggest complaint for me is that i have 3 aneurysms in my shaft. 2 really good sized ones near the base where the tubes exit the cylinders, and 1 smaller one on the right side about 2" below the glans. The doctor told me that the aneurysms were not in the implant cylinders, but in the penile tissue itself. So it seems I stuck with those. I will say this however, these bulges reduced a little after several months but have reappeared with increased size again after the revision.

I think it all just takes time to adjust and heal. Tissues swell even when they weren't directly cut or something. I go back to Asheville on Monday the 6th for a follow up and I'll be asking a lot of questions.

I'd do it all over again if I had to. A long, pretty, limp penis does me no good at all. A shorter, uglier, hard penis has the potential to do me lots of good. I think that much of you concerns (and mine too) will go away in due time.
harddrive

terryneal
Posts: 29
Joined: Thu Sep 29, 2011 12:02 pm

Re: I had Surgery Oct 8 and regretting it

Postby terryneal » Sat Dec 03, 2011 10:25 pm

I'm going to try and get an x-ray before anything...I want to see the placement of everything. Are you seeing an actual, real doctor at Asheville? I'm not...only residents. I hope you get this resolved...I'm trying but discouraged.
bionicguy3040

knotreel
Posts: 263
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Re: I had Surgery Oct 8 and regretting it

Postby knotreel » Sun Dec 04, 2011 8:31 pm

Terry, I doubt that there is anything wrong, from what I read in your posts. Were some underwear that is suportive, like jockey "pouch" briefs and keep it looking up compressed to your abdomen, start inflating to as much as you can and work toward keeping it at max inflation for an hour a day and give it time. I was not ready to "use" mine till about 2 months. Some guys go to work with theirs right away but there were little twinges here and there that only started to go away at 2 months. Not everybody is the same and but it took me till about three months before it got really comfortable and I didn't have any issues during healing like the fluid sacks some have. Just be patient. You could search this site for underwear and read some of that. Most people say it takes up to a year for the implant to get to it's best.
age 74 married, Robotic RP Dec.2009. Implanted Jan 2011 with AMS 700LGX and AMS 800 AUS. (AMS 1500). IPP failed March 2018 , leak. Planning an AUS revision (total replacement) in 2018, now I need the IPP too.

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: I had Surgery Oct 8 and regretting it

Postby hard drive » Mon Dec 05, 2011 9:17 pm

terryneal wrote:I'm going to try and get an x-ray before anything...I want to see the placement of everything. Are you seeing an actual, real doctor at Asheville? I'm not...only residents. I hope you get this resolved...I'm trying but discouraged.


Terry, listen... you need to be patient for a bit and let your tissues reform themselves and accept the new house guests. It's very possible you might need a revision down the road, but you won't know that for sure until you get 6 months to a year under your belt... Really... DO NOT BE DISCOURAGED! Nothing ever gets resolved that way.

I had a follow up in Asheville today and it was the 1st time I saw a resident, but that was my fault. My appointment was supposed to be tomorrow, but I wrote it down wrong. The resident listened well, took great notes and heard my concerns. We decided together that I will wait 6 months for my parts to heal and then see the top dog there who has done more of these implants than you can shake a stick at. He told me that if I'm not happy with this after my waiting and healing time, the VA will get their top gun to do a full do over. The thing is that by this time, they know very well my body and physical dimensions and requirements to make this an idea result.

It it's needed, I won't think twice about doing dick job number 3. Give this thing some time to calm down and re-evaluate.
harddrive


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