Titan OTR - Scary new occurance - Update

The final frontier. Deciding when, if and how.
hard drive
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Joined: Wed Mar 17, 2010 4:31 pm

Titan OTR - Scary new occurance - Update

Postby hard drive » Tue Dec 13, 2011 7:07 pm

Strangely, I had posted a thread here about how my pump bulb was going flat and and staying that way, but I can't find the thread now to post updated information.

I thought it may be a fluke (the bulb) as suggested by one of the other members, but as it turns out it's not a fluke, or a kinked line. I can reproduce this behaviour over and over again. It's just that after it's mostly inflated, or after a hot shower where my tissues are easily expanded, I give it a final few tissue stretching pumps, the bulb will go flat and won't draw any more from the reservoir.

My theory is this... I think that with the additional tubing added during the revision, and possible fluid loss during the surgery, there's is now just barely enough saline to pump up the erection. No extra fluid seems to be present to really put pressure on the cylinders or my tissues. I'm a bit disappointed by this but I can live with it. I was worried the device was failing, but I'm pretty sure it's just low on fluid. I doubt it could be tuned up with out another revision, but it's not worth it to me.
harddrive

antelope
Posts: 1497
Joined: Sun Nov 14, 2010 3:17 am
Location: Baton Rouge

Re: Titan OTR - Scary new occurance - Update

Postby antelope » Tue Dec 13, 2011 8:02 pm

I'd still get it seen about. The surgeon should know about this--perhaps he will have a simple solution.
Born 1948, wed 1969. BPH & Type II Diabetes at age 35. TURP-2002; ED even before that--diabetes. Cardiac valve surgery: 2007 & 2019. Poor results with pills. Started trimix injections in Nov, 2010. Great results from the very beginning.

KMeister
Posts: 446
Joined: Sun Aug 28, 2011 5:43 pm

Re: Titan OTR - Scary new occurance - Update

Postby KMeister » Tue Dec 13, 2011 11:34 pm

Also, it wouldn't be a bad idea to call Titan's customer service and get their opinion.

KMeister

hard drive
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Re: Titan OTR - Scary new occurance - Update

Postby hard drive » Fri Dec 16, 2011 2:29 am

I'm out of state right now caring for my Dad. He has stage 4 brain / lung cancer and mom can't care for him alone anymore. He isn't expected to survive much longer, so my penis issues will have to wait until I go back home in a few weeks or days? Who knows...?

Anyway, I will contact Coloplast while I'm here and my surgeon when I go home. Thanks for you suggestions, I surely will act on them.
harddrive

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: Titan OTR - Scary new occurance - Update

Postby hard drive » Mon Jan 16, 2012 1:57 pm

Well, I'm back home, my father passed just 3 days prior to Christmas. I was pumping up lastnight when the bulb went flat and stayed that way, then I felt intense itching and burning in my scrotum, then it developed a pocket of fluid (either blood or saline I suppose). My face flushed and burned like an allergic reaction.

There was a little pain in the scrotum which faded fairly quickly along with the flushing. Now, however the IPP won't inflate at all, one squeeze and the bulb is flat and stays that way until the release button is pushed. I've tried to reach the VA in Asheville NC where the revision was done, but they are not open due to MLK day.

I'm pretty upset right now. Hopefully I'll be able to get through tomorrow and get this thing repaired pretty quickly.
harddrive

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: Titan OTR - Scary new occurance - Update

Postby hard drive » Tue Jan 17, 2012 12:42 pm

Appointment with urolgy at 9AM in Asheville tomorrow morning. Maybe I can get this thing fixed quickly...
harddrive

Cajun Jeff
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Joined: Sat Aug 01, 2009 11:44 pm
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Re: Titan OTR - Scary new occurance - Update

Postby Cajun Jeff » Tue Jan 17, 2012 10:02 pm

hard drive.. best of luck with the appointment.

Cajun Jeff
68 years old, Married 48 years. Prostate Cancer surgery 11 years ago. Tried Pills, VED, moved to injections (EdEx) for past 6 years. Implanted with AMS 700 LGX by Dr Hellstrom in New Orleans at Tulane Medical. 1/13/20

hard drive
Posts: 395
Joined: Wed Mar 17, 2010 4:31 pm

Re: Titan OTR - Scary new occurance - Update

Postby hard drive » Wed Jan 18, 2012 7:38 pm

Well, I went to see my urologist today and he confirmed that the implant has failed and leaked into my scrotum. A complete new implant procedure is going to take place probably in March. He said that if he gets a cancellation, it will take place sooner. Here we go again... Fingers crossed...
harddrive

antelope
Posts: 1497
Joined: Sun Nov 14, 2010 3:17 am
Location: Baton Rouge

Re: Titan OTR - Scary new occurance - Update

Postby antelope » Wed Jan 18, 2012 10:18 pm

So sorry. Chin up, pal. Best wishes for a successful replacement.

Greg
Born 1948, wed 1969. BPH & Type II Diabetes at age 35. TURP-2002; ED even before that--diabetes. Cardiac valve surgery: 2007 & 2019. Poor results with pills. Started trimix injections in Nov, 2010. Great results from the very beginning.

Cajun Jeff
Posts: 1212
Joined: Sat Aug 01, 2009 11:44 pm
Contact:

Re: Titan OTR - Scary new occurance - Update

Postby Cajun Jeff » Wed Jan 18, 2012 10:51 pm

hard drive.. that really sucks! sorry to hear that.

Best of luck.

Cajun Jeff
68 years old, Married 48 years. Prostate Cancer surgery 11 years ago. Tried Pills, VED, moved to injections (EdEx) for past 6 years. Implanted with AMS 700 LGX by Dr Hellstrom in New Orleans at Tulane Medical. 1/13/20


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