Permanently disfigured?

The final frontier. Deciding when, if and how.
Tsanchez12369
Posts: 227
Joined: Fri Dec 23, 2016 7:52 pm
Location: SAN Francisco

Re: Permanently disfigured?

Postby Tsanchez12369 » Wed Sep 19, 2018 8:14 pm

Not 100% positive, but if the infection rate is 3%-then that’s the risk each time one has an implant. That is, the risk of infection does not increase above the 3% each time. A math person can probably clarify. I just didn’t want anyone worrying unnecessarily about a revision.
Sept 11, 2018: excision, grafting (human cadever tissue) and implant. Doc is Dr Edward Karpman in Mountain View, surgery at El Camino Hospital, LOS Gatos CA. AMS 700 CX infrapubic 18 cm + 3 cm RTE. http://www.peyroniesforum.net/index.php

Hawkman
Posts: 556
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Location: PA
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Re: Permanently disfigured?

Postby Hawkman » Wed Sep 19, 2018 9:09 pm

Tsanchez12369 wrote:Not 100% positive, but if the infection rate is 3%-then that’s the risk each time one has an implant. That is, the risk of infection does not increase above the 3% each time. A math person can probably clarify. I just didn’t want anyone worrying unnecessarily about a revision.


Not necessarily. I have no idea what infection rates are other than what I read. I do agree statistically speaking that if you flip a coin there is a 50% chance it will come up heads. If you flip the coin 3 times and it comes up tails each time, the 4th time you flip it the odds are still only 50% that it will come up heads the 4th time. The odds do not change. My understanding, however, is that they are not saying the odds change because you have had 2 flips of the coin but that there is a higher risk of infection in pulling out an implant and inserting another. Everything is not the same as the original surgery. There is more scar tissue present, time removing a device, etc.

It is a different type of surgery with different odds.
Prostatectomy 2004-Bimix caused Peyronies-Viagra had little effect. Active sex life with wife of 50 yrs- been dependent on a VED for 10 yrs. 22cm Titan w/Dr. Eid Aug 7th See my Implant Journal -> http://www.peyroniesforum.net/index.php/board,56.0.html

DougAnd
Posts: 1536
Joined: Sun Jul 08, 2018 5:10 pm
Location: Melbourne, Florida

Re: Permanently disfigured?

Postby DougAnd » Wed Sep 19, 2018 9:29 pm

My plan is to get my pump position fixed asap. Until I can use VED I will keep on shrinking I have no way to stop the shrinking and the tip pressure otherwise. Using the VED I can stretch myself back to 6.5 inches and have everything fixed at once next year.
LGX 18cm+3cmRTE 8 / 8/18 by Docs Saracino , Prody of FL Disfigured by Implant. Married 31 years, Functionally impotent 2+ years. 4" day of surgery now 7" inflated after VED 6.5" without. Pump moved 12/4/18 by Dr Kata

justanotherdrumber
Posts: 242
Joined: Sun Mar 25, 2018 11:29 pm
Location: Erie, PA

Re: Permanently disfigured?

Postby justanotherdrumber » Wed Sep 19, 2018 10:18 pm

Hawkman wrote:
Tsanchez12369 wrote:Not 100% positive, but if the infection rate is 3%-then that’s the risk each time one has an implant. That is, the risk of infection does not increase above the 3% each time. A math person can probably clarify. I just didn’t want anyone worrying unnecessarily about a revision.


Not necessarily. I have no idea what infection rates are other than what I read. I do agree statistically speaking that if you flip a coin there is a 50% chance it will come up heads. If you flip the coin 3 times and it comes up tails each time, the 4th time you flip it the odds are still only 50% that it will come up heads the 4th time. The odds do not change. My understanding, however, is that they are not saying the odds change because you have had 2 flips of the coin but that there is a higher risk of infection in pulling out an implant and inserting another. Everything is not the same as the original surgery. There is more scar tissue present, time removing a device, etc.

It is a different type of surgery with different odds.

Page 12
Overall, infection rates are generally 1.8%–10% for first-time prostheses and 7%–21% for replacements [revisions].

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3296438/
Erie,PA
Age 64 - g/f 34
Implanted ams700 lgx, 18cm+1cm RTE
March 2018

alibaba
Posts: 3027
Joined: Sun Oct 12, 2014 8:04 pm

Re: Permanently disfigured?

Postby alibaba » Wed Sep 19, 2018 10:39 pm

Tsanchez12369 wrote:Not 100% positive, but if the infection rate is 3%-then that’s the risk each time one has an implant. That is, the risk of infection does not increase above the 3% each time. A math person can probably clarify. I just didn’t want anyone worrying unnecessarily about a revision.


Just gets down to playing with the math. 3% on average is a chance of 3 people out of 100 getting an infection but if you are implanted twice out of 100 then you are 2 x 3 or a 6 in 100 chance. Hope this makes sense. I know some will say your second chance will be a different group of 100 but will it? You have doubled your risk of having an infection by having the surgery 2 times.

Let's do something different. With 3% of a 1000 that is 30 infections. Lets say persons from 1-680 nobody had an infection. Patients number 681 through 1000 had all 30 of infections (3% of the original 1000). If you group the first 6.8 groups of 100 together then their infection rate is 0%. If you go to 681 through 1000 that is 289 of the 319 are infection free but an infection rate of 9.41%. Add both groups together you are back to 30/1000 though or 3%. It is a numbers game. We all spin the wheel and gamble on the result. It weighs on me a lot being I've had 22 surgeries, all infection free but I keep asking myself how long can this run continue?
LGX 21cm .Milam 01/13/16. Horror; both service and surgical outcome. hated infrapubic installation. Kramer revision 03/01/17. 22cm Titan +1.5cm extender. Those who think their opinion is the only one that matters are a danger to themselves and others.

alibaba
Posts: 3027
Joined: Sun Oct 12, 2014 8:04 pm

Re: Permanently disfigured?

Postby alibaba » Wed Sep 19, 2018 10:48 pm

Hawkman, your chance of heads or tails is 50% per single throw. If you throw twice, your chance is either 1 time heads, 1 time tails (still 50 %) or 2 times tails (100%) or 2 times heads (100%). Depending on your call it could be 0%. Hope this makes sense, but your 50% is correct per single throw. Again, there are many ways to see the numbers. 40 years out of school or I could calculate the actual odds like an actuary would but the numbers do change. You put 1 bullet in a 7 shot cylinder and spin you have a 1 in 7 chance of blowing your brains out but put 2 in, you have a 2 in 7 chance of blowing your brains out.
LGX 21cm .Milam 01/13/16. Horror; both service and surgical outcome. hated infrapubic installation. Kramer revision 03/01/17. 22cm Titan +1.5cm extender. Those who think their opinion is the only one that matters are a danger to themselves and others.

jelquinginjury
Posts: 195
Joined: Wed Feb 15, 2017 9:52 am

Re: Permanently disfigured?

Postby jelquinginjury » Wed Sep 19, 2018 10:49 pm

justanotherdrumber wrote:
Hawkman wrote:
Tsanchez12369 wrote:Not 100% positive, but if the infection rate is 3%-then that’s the risk each time one has an implant. That is, the risk of infection does not increase above the 3% each time. A math person can probably clarify. I just didn’t want anyone worrying unnecessarily about a revision.


Not necessarily. I have no idea what infection rates are other than what I read. I do agree statistically speaking that if you flip a coin there is a 50% chance it will come up heads. If you flip the coin 3 times and it comes up tails each time, the 4th time you flip it the odds are still only 50% that it will come up heads the 4th time. The odds do not change. My understanding, however, is that they are not saying the odds change because you have had 2 flips of the coin but that there is a higher risk of infection in pulling out an implant and inserting another. Everything is not the same as the original surgery. There is more scar tissue present, time removing a device, etc.

It is a different type of surgery with different odds.

Page 12
Overall, infection rates are generally 1.8%–10% for first-time prostheses and 7%–21% for replacements [revisions].

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3296438/

21% :( fuck its a very high rate
Injury that caused venous leak.
In my 20s thinking about implant

Hawkman
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Re: Permanently disfigured?

Postby Hawkman » Wed Sep 19, 2018 10:55 pm

jelquinginjury wrote: 21% :( fuck its a very high rate


Yeh, I have a hard time believing that. There are lots of replacement implants or revisions here. Some have had 3 or 4 yet relatively few infections. That is just my unscientific guess at least.
Prostatectomy 2004-Bimix caused Peyronies-Viagra had little effect. Active sex life with wife of 50 yrs- been dependent on a VED for 10 yrs. 22cm Titan w/Dr. Eid Aug 7th See my Implant Journal -> http://www.peyroniesforum.net/index.php/board,56.0.html

alibaba
Posts: 3027
Joined: Sun Oct 12, 2014 8:04 pm

Re: Permanently disfigured?

Postby alibaba » Thu Sep 20, 2018 12:03 am

I would tend to think the 21% are people who are getting an infected implant removed and replaced with a rigid rod to hold space or an antibiotic infused Boston Scientific implant so infection is part of the reason for the revision.
LGX 21cm .Milam 01/13/16. Horror; both service and surgical outcome. hated infrapubic installation. Kramer revision 03/01/17. 22cm Titan +1.5cm extender. Those who think their opinion is the only one that matters are a danger to themselves and others.

Sensei
Posts: 17
Joined: Wed Mar 21, 2018 8:13 pm

Re: Permanently disfigured?

Postby Sensei » Thu Sep 20, 2018 1:53 am

The article that claimed infection rates of 21% for revisions is quite out of date, and was published in 2011. Most publications are based on data from a few years earlier, which makes these findings even older. I know from a doctor that does revisions, the standard practice is to irrigate the area with antibiotics after the old device is removed, and before the new device is placed. Even with that protocol, the revision rate may be slightly higher than a first-time placement, but I am told that it is no where near 21%.In the past, they sometimes tried to replace a single part, which caused infection problems.
Married for 35 years, 63 years old, pretty fit. ED advanced in last 20 years. Pills worked initially, and shots were very effective for several years. Developed some PD (35 degrees) and VL within the last 2 years. Implanted 5/30/2018 with a Titan OTR.


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