Scarring in left corpus cavernusom, hopless and devastated

[misterecz]

In my case, pentoxifylline did not work, and the vacuum pump worsened (I think more fibrosis). I think it is very different to have fibrosis in the tunica than to have fibrosis in the corpus cavernosum, so we have to be careful with what we advise

Pentoxifylline is proven to work for corporal fibrosis. I suspect you simply were not diligent enough or was paranoid by the sensation of the fibrosis/scar being disrupted which is good and normal when using a pump. No need to discourage others of the only effective non surgical treatments. The most important thing to have in these cases is the mental strength to use and stick with the treatments even past mild discomfort

Hello, it is true that everyone who has Peyronie's takes pentoxifylline, but it is also true that doctors have stopped sending it to patients because there is not enough scientific evidence. In my case it did not help me, it only helped me to have tachycardia, and more anxiety since I suffer from anxiety, and pentoxifylline is similar to caffeine. As for the vacuum pump, I do not intend to discourage anyone, the only thing I want is that no more damage is done. In my experience, the only thing that really helps are the substances that make you have good nocturnal erections and therefore more oxygenated penis. substances such as tadalafil 5mg, l arginine, zinc, sildenafil... etc. and a good diet and moderate physical exercise. I think it's easier to do a good rehabilitation of the penis having as many erections as possible and with good blood circulation. As for the vacuum pump and extenders for body fibrosis, I think they are useless unless you want to go for the implant, so yes, there are doctors who recommend vacuum pumps and extenders to recover size or minimize the loss of size.
Could you tell me what studies have recently shown what you say about pentoxifylline? Do you have bodily fibrosis? By the way, you can't suspect anything of me (if I wasn't diligent or I was too paranoid) since you don't know me and you don't know my case exactly. You remind me of those many urologists who have no idea about penile diseases and say the same thing you say: ohhh you are too paranoid.
The only thing I want is that no more damage is done than what this young man already has on his penis.
In the same way, without knowing you, I could say that I suspect that you think to get more subscribers to your YouTube channel and more likes on your videos. Do you see my suspicion about you correct?
Another recommendation that I would make to this young man would be that he write directly to Dr. Trost or Dr. Eid in the forum of peyronies forus.net in the section they have in the forum and see their opinion since they are specialized doctors in this and are those who can give the best opinion.

You literally said you have anxiety. This is why you weren't able to get through the initial discomfort and actually stick with VED and Pentox. Pentox improves blood flow by reducing blood viscoscity. IDK what has anything to do with coffee since coffee is literally the opposite.

There's plenty of studies on Pentox and VED for fibrosis and corporal fibrosis:

- https://escholarship.org/content/qt39f6 ... f?t=lnr1cs
- https://onlinelibrary.wiley.com/doi/ful ... andr.12258

And many more if you google round. I'd rather believe the science than someone who couldn't stick to the treatments.

[España1980]

Pentoxifylline is proven to work for corporal fibrosis. I suspect you simply were not diligent enough or was paranoid by the sensation of the fibrosis/scar being disrupted which is good and normal when using a pump. No need to discourage others of the only effective non surgical treatments. The most important thing to have in these cases is the mental strength to use and stick with the treatments even past mild discomfort

Hello, it is true that everyone who has Peyronie's takes pentoxifylline, but it is also true that doctors have stopped sending it to patients because there is not enough scientific evidence. In my case it did not help me, it only helped me to have tachycardia, and more anxiety since I suffer from anxiety, and pentoxifylline is similar to caffeine. As for the vacuum pump, I do not intend to discourage anyone, the only thing I want is that no more damage is done. In my experience, the only thing that really helps are the substances that make you have good nocturnal erections and therefore more oxygenated penis. substances such as tadalafil 5mg, l arginine, zinc, sildenafil... etc. and a good diet and moderate physical exercise. I think it's easier to do a good rehabilitation of the penis having as many erections as possible and with good blood circulation. As for the vacuum pump and extenders for body fibrosis, I think they are useless unless you want to go for the implant, so yes, there are doctors who recommend vacuum pumps and extenders to recover size or minimize the loss of size.
Could you tell me what studies have recently shown what you say about pentoxifylline? Do you have bodily fibrosis? By the way, you can't suspect anything of me (if I wasn't diligent or I was too paranoid) since you don't know me and you don't know my case exactly. You remind me of those many urologists who have no idea about penile diseases and say the same thing you say: ohhh you are too paranoid.
The only thing I want is that no more damage is done than what this young man already has on his penis.
In the same way, without knowing you, I could say that I suspect that you think to get more subscribers to your YouTube channel and more likes on your videos. Do you see my suspicion about you correct?
Another recommendation that I would make to this young man would be that he write directly to Dr. Trost or Dr. Eid in the forum of peyronies forus.net in the section they have in the forum and see their opinion since they are specialized doctors in this and are those who can give the best opinion.

You literally said you have anxiety. This is why you weren't able to get through the initial discomfort and actually stick with VED and Pentox. Pentox improves blood flow by reducing blood viscoscity. IDK what has anything to do with coffee since coffee is literally the opposite.

There's plenty of studies on Pentox and VED for fibrosis and corporal fibrosis:

- https://escholarship.org/content/qt39f6 ... f?t=lnr1cs
- https://onlinelibrary.wiley.com/doi/ful ... andr.12258

And many more if you google round. I'd rather believe the science than someone who couldn't stick to the treatments.

I repeat to you, what do you know about me? You don't know anything, to say why I couldn't continue with pentoxifylline and VED.
I repeat it again VED did more damage and pentoxifylline is similar to caffeine, google it you who like to google so much. Type pentoxifylline and caffeine into google.
On the other hand, I think that the links that you have published have not been read to you even once. The first is from a study from 2006 (almost 20 years ago from that study) which is also unclear. and the second link is about the use of VED before getting an implant and in which they do not have any clear conclusion.
I still believe that you do all this for your youtube channel because you say and post nonsense things just to get the reader's attention

[wolfpacker]

Hello, it is true that everyone who has Peyronie's takes pentoxifylline, but it is also true that doctors have stopped sending it to patients because there is not enough scientific evidence. In my case it did not help me, it only helped me to have tachycardia, and more anxiety since I suffer from anxiety, and pentoxifylline is similar to caffeine. As for the vacuum pump, I do not intend to discourage anyone, the only thing I want is that no more damage is done. In my experience, the only thing that really helps are the substances that make you have good nocturnal erections and therefore more oxygenated penis. substances such as tadalafil 5mg, l arginine, zinc, sildenafil... etc. and a good diet and moderate physical exercise. I think it's easier to do a good rehabilitation of the penis having as many erections as possible and with good blood circulation. As for the vacuum pump and extenders for body fibrosis, I think they are useless unless you want to go for the implant, so yes, there are doctors who recommend vacuum pumps and extenders to recover size or minimize the loss of size.
Could you tell me what studies have recently shown what you say about pentoxifylline? Do you have bodily fibrosis? By the way, you can't suspect anything of me (if I wasn't diligent or I was too paranoid) since you don't know me and you don't know my case exactly. You remind me of those many urologists who have no idea about penile diseases and say the same thing you say: ohhh you are too paranoid.
The only thing I want is that no more damage is done than what this young man already has on his penis.
In the same way, without knowing you, I could say that I suspect that you think to get more subscribers to your YouTube channel and more likes on your videos. Do you see my suspicion about you correct?
Another recommendation that I would make to this young man would be that he write directly to Dr. Trost or Dr. Eid in the forum of peyronies forus.net in the section they have in the forum and see their opinion since they are specialized doctors in this and are those who can give the best opinion.

You literally said you have anxiety. This is why you weren't able to get through the initial discomfort and actually stick with VED and Pentox. Pentox improves blood flow by reducing blood viscoscity. IDK what has anything to do with coffee since coffee is literally the opposite.

There's plenty of studies on Pentox and VED for fibrosis and corporal fibrosis:

- https://escholarship.org/content/qt39f6 ... f?t=lnr1cs
- https://onlinelibrary.wiley.com/doi/ful ... andr.12258

And many more if you google round. I'd rather believe the science than someone who couldn't stick to the treatments.

I repeat to you, what do you know about me? You don't know anything, to say why I couldn't continue with pentoxifylline and VED.
I repeat it again VED did more damage and pentoxifylline is similar to caffeine, google it you who like to google so much. Type pentoxifylline and caffeine into google.
On the other hand, I think that the links that you have published have not been read to you even once. The first is from a study from 2006 (almost 20 years ago from that study) which is also unclear. and the second link is about the use of VED before getting an implant and in which they do not have any clear conclusion.
I still believe that you do all this for your youtube channel because you say and post nonsense things just to get the reader's attention

Agreed with him promoting the YouTube stuff, seems like half of his posts are "I have a video about this on my channel" self-promotion etc.

[misterecz]

I repeat to you, what do you know about me? You don't know anything, to say why I couldn't continue with pentoxifylline and VED.
I repeat it again VED did more damage and pentoxifylline is similar to caffeine, google it you who like to google so much. Type pentoxifylline and caffeine into google.
On the other hand, I think that the links that you have published have not been read to you even once. The first is from a study from 2006 (almost 20 years ago from that study) which is also unclear. and the second link is about the use of VED before getting an implant and in which they do not have any clear conclusion.
I still believe that you do all this for your youtube channel because you say and post nonsense things just to get the reader's attention

In the videos i mentioned i spent almost an hour deep diving into pentoxifylline, VED and go over various studies in-depth. So why not provide the user with those resources? See: https://www.youtube.com/watch?v=S6krAy0ApAI plus I list all my references there.

- What is unclear about the first study?: "In summary, it appears that the corporal fibrosis that is the ultimate result of prolonged untreated priapism may be attenuated by drugs that upregulate the effects of NO"

Pentoxifylline is an anti-fibrotic medication. This is not disuptable.
and a VED is used to dilate and reform scar tissue.

References:
Pentox:
- Effects on Tunica: https://ncbi.nlm.nih.gov/pmc/articles/PMC3543151/
- Calcification 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3565600/
- Calcification 2: https://tau.amegroups.com/article/view/1263/html
- Calcification 3: https://pubmed.ncbi.nlm.nih.gov/21102473/
- Traction: https://www.sciencedirect.com/science/a ... 6119300923
- Efficacy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4893507/
- Fibrosis 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4757011/
- Fibrosis 2: https://pubmed.ncbi.nlm.nih.gov/25027804/
- Fibrosis 3: https://pubmed.ncbi.nlm.nih.gov/16409234/
- Fibrosis 4: https://onlinelibrary.wiley.com/doi/ful ... 109.008730

VED:
- https://onlinelibrary.wiley.com/doi/pdf ... andr.12968
- https://pubmed.ncbi.nlm.nih.gov/27938991/
- https://journals.lww.com/ajandrology/Fu ... _a.14.aspx

Can you please post a reference on how pentox is like caffeine in regards to anxiety. Seems like that's specific to your case, in most cases it is well tolerated so why shouldn't OP try it. I'm sure his doctor will inform him, specially as his doctor will know his history.

[España1980]

I repeat to you, what do you know about me? You don't know anything, to say why I couldn't continue with pentoxifylline and VED.
I repeat it again VED did more damage and pentoxifylline is similar to caffeine, google it you who like to google so much. Type pentoxifylline and caffeine into google.
On the other hand, I think that the links that you have published have not been read to you even once. The first is from a study from 2006 (almost 20 years ago from that study) which is also unclear. and the second link is about the use of VED before getting an implant and in which they do not have any clear conclusion.
I still believe that you do all this for your youtube channel because you say and post nonsense things just to get the reader's attention

In the videos i mentioned i spent almost an hour deep diving into pentoxifylline, VED and go over various studies in-depth. So why not provide the user with those resources? See: https://www.youtube.com/watch?v=S6krAy0ApAI plus I list all my references there.

- What is unclear about the first study?: "In summary, it appears that the corporal fibrosis that is the ultimate result of prolonged untreated priapism may be attenuated by drugs that upregulate the effects of NO"

Pentoxifylline is an anti-fibrotic medication. This is not disuptable.
and a VED is used to dilate and reform scar tissue.

References:
Pentox:
- Effects on Tunica: https://ncbi.nlm.nih.gov/pmc/articles/PMC3543151/
- Calcification 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3565600/
- Calcification 2: https://tau.amegroups.com/article/view/1263/html
- Calcification 3: https://pubmed.ncbi.nlm.nih.gov/21102473/
- Traction: https://www.sciencedirect.com/science/a ... 6119300923
- Efficacy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4893507/
- Fibrosis 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4757011/
- Fibrosis 2: https://pubmed.ncbi.nlm.nih.gov/25027804/
- Fibrosis 3: https://pubmed.ncbi.nlm.nih.gov/16409234/
- Fibrosis 4: https://onlinelibrary.wiley.com/doi/ful ... 109.008730

VED:
- https://onlinelibrary.wiley.com/doi/pdf ... andr.12968
- https://pubmed.ncbi.nlm.nih.gov/27938991/
- https://journals.lww.com/ajandrology/Fu ... _a.14.aspx

Can you please post a reference on how pentox is like caffeine in regards to anxiety. Seems like that's specific to your case, in most cases it is well tolerated so why shouldn't OP try it. I'm sure his doctor will inform him, specially as his doctor will know his history.

[España1980]

I repeat to you, what do you know about me? You don't know anything, to say why I couldn't continue with pentoxifylline and VED.
I repeat it again VED did more damage and pentoxifylline is similar to caffeine, google it you who like to google so much. Type pentoxifylline and caffeine into google.
On the other hand, I think that the links that you have published have not been read to you even once. The first is from a study from 2006 (almost 20 years ago from that study) which is also unclear. and the second link is about the use of VED before getting an implant and in which they do not have any clear conclusion.
I still believe that you do all this for your youtube channel because you say and post nonsense things just to get the reader's attention

In the videos i mentioned i spent almost an hour deep diving into pentoxifylline, VED and go over various studies in-depth. So why not provide the user with those resources? See: https://www.youtube.com/watch?v=S6krAy0ApAI plus I list all my references there.

- What is unclear about the first study?: "In summary, it appears that the corporal fibrosis that is the ultimate result of prolonged untreated priapism may be attenuated by drugs that upregulate the effects of NO"

Pentoxifylline is an anti-fibrotic medication. This is not disuptable.
and a VED is used to dilate and reform scar tissue.

References:
Pentox:
- Effects on Tunica: https://ncbi.nlm.nih.gov/pmc/articles/PMC3543151/
- Calcification 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3565600/
- Calcification 2: https://tau.amegroups.com/article/view/1263/html
- Calcification 3: https://pubmed.ncbi.nlm.nih.gov/21102473/
- Traction: https://www.sciencedirect.com/science/a ... 6119300923
- Efficacy: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4893507/
- Fibrosis 1: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4757011/
- Fibrosis 2: https://pubmed.ncbi.nlm.nih.gov/25027804/
- Fibrosis 3: https://pubmed.ncbi.nlm.nih.gov/16409234/
- Fibrosis 4: https://onlinelibrary.wiley.com/doi/ful ... 109.008730

VED:
- https://onlinelibrary.wiley.com/doi/pdf ... andr.12968
- https://pubmed.ncbi.nlm.nih.gov/27938991/
- https://journals.lww.com/ajandrology/Fu ... _a.14.aspx

Can you please post a reference on how pentox is like caffeine in regards to anxiety. Seems like that's specific to your case, in most cases it is well tolerated so why shouldn't OP try it. I'm sure his doctor will inform him, specially as his doctor will know his history.

ok friend, whatever you say, I wish you to gain a lot of popularity and many more things with your youtube channel.
This conversation has ceased to be of interest to me

[España1980]

Hi guys

Its gonna be a longer post.

Some background:Im 27 years old healthy and active guy. My symptoms started 2 months ago. i havent had sexual relationship in 2 years due to my anxiety and depression because of things that happened and happening in my life. So in early january this year i finally got into a relationship but that time i completly lost my sex drive and thus my erection quality suffered. Before i first slept with my new girlfriend i went to a uro to rule out phyisical causes of this Erectile Dysfunction. Everything was good and concluded its just my mental state so he prescribed cialis and viagra and said try each one to regain my confidence. Tried both on seperate occasions and found that cialis is much better, but more importantly it turned out it really was in my head. My penis worked really well from this point in early january till end of march and i got my sex drive back. I still kept using cialis sometimes when stress was really high in my life.

So One morning in the end of march i woke up and wanted to do a quick morning session with my girlfriend but while i was getting an erection it was painful and in semi erect state it had a curvature of like 60 degree to the left. When i reached full erection it got straight and after like a minute the pain subsided. I also noticed a harder more dense part on the left side of my flaccid penis shaft.

Before all of this me and my girlfirend were on vacation for two weeks. Because its a fairly new relationship we had a lot of sex in this two weeks like 5-6 times a day at least. So i thought maybe i just used it too much amd it will get better.

Regardless i went to see a uro just in case on the third day. He didnt really know what it was said maybe the beggining of peyronies maybe just a mild injury. So prescribed me NSAID and told me to get back in two weeks if its not imrpoving. Immediately started reading peyronies forum and later this one and started supplementing L-arganine, l-citruline, q10, e vitamine, paba, and daily 5 mg cialis. Pain almost fully dissapeared in 1 week and my erections were as good as ever but at the end of week two the hardness of the left part of my penile shaft and the semi erect curve remained so i went back. He concluded that the firmer part of my penis is smaller but lets do an MRI.

MRI was done in May 11th. Around this time i still could get an erection for penetration and keep it but noticed that i cant "flex" it as hard as before. (The feeling when you kegel during erection). Curve wasnt really worse during erection so all was kinda good still.

This is when the worst part started. MRI results were sent to my uro who said some scarring can be seen on the left side but he said it probably will get better so just wait it out. I asked for a contact to a peyronie specialist which he did gave me. I asked for an appointment just a few days later. In the meanwhile i read the MRI results and it stated i have a part in my penis in the left corpus cavernosum (2,8cm x 0,7 cm) which looked different and could be fibrosis which was devastateing news because by that time i read a lot in this forum and on other sites and knew corporal fibrosis is much worse than peyronies. I went to the specialist two weeks ago he read the MRI told me that it must be a mistake because fibrosis is very rare so he did a doppler ultrasound and regardless found the harder spot where he concluded my tunica is in good contition but deeper inside my left side of my penis there is some scarring but said otherwise the blood flow in this area is good which is good. (He did doppler in flaccid state). After he prescribed me vitamin e and cialis daily (these two i already took for almost 2 months) and he also prescribed Potaba which i know didnt really worked for most of you. But it doesnt matter cause this treatment is for peyronies not corporal fibrosis but i give it a try. Told me to take these for 3 months and get back. He also reassured me that he is sure it will heal over time so i should not worry and the Erectile Dysfunction im experiencing is in my head.

Im still going to get a 3rd opinion in a few days but im just devasteted because in the last 2 weeks my erection quality is really bad. Like i can get and erection while my penis laying on my stomach but as soon as i lift it or stand up it starts to deflate like a ballon. And im sure theres a mental part to this cause im stressing on this so so much all day everyday but i think something is not right.

So im asking for some advice or hope or similar stories if any of you had any experience like this.

Also what could be the cause. I read that priapism can cause this at my age and as i sated i tried viagra and cialis as well in the past months but never full dosage. Like max 40-50mg viagra or 10mg cialis. I cant remember having priapism. Is it possible to have priapism in my sleep and i didnt noticed it? Like for 4-5 hours which caused fibrosis then i woke up and by that time the erection subsided?

Also if i had priapism which caused corporal fibrosis shouldnt it be causing Erectile Dysfunction immediately after? Because after the onset of the symptoms i had an excelent erection quality for a month and a half. Like some of the best i ever had. And it started to deteriorate a month ago but got really bad in the last two weeks.

Im really devasteted and dont know what to do or where to ask for help because its not peyronies in my understanding but guessed i give it a try on this forum. Thank you for your time and for you answers advance

ei friend every time I read your story over and over again I see more similar to my story. I don't think you had priapism, I think you had a small fracture, not your typical fracture. The same thing happened to me, when the scar was fresh my erections were good, as time went by they got worse. There is also a psychological percentage in it. As I told you in the first message, go to the urologist most specialized in diseases or injuries of the penis. Try to get an erection doppler and that way you will clear up your doubts and he will give you some treatment. do not listen to what other people may tell you such as the use of VED or DMSO. Always use only what your doctor tells you and trust him but do not risk making your penis worse, because we only have one penis and these people who advise this will not be responsible for what happens to your penis. Be careful, encourage yourself and little by little you will surely improve when you calm down. If you ever need to talk send me a private message.