New Member - Loss of Sensation

This is the place to say hi to the board. Tell us something about yourself. If you're not quite ready to post for advice, that's fine.
Forum rules
For your security and privacy, FrankTalk will time you out after five minutes if it senses no activity. Posting on the forums may take longer than five minutes and the site does not sense your typing a post as activity. If you are submitting a post that might take a few minutes to write, please compose it in a word processing program and then cut and paste it into the discussion board. This will save a lot of frustration.
Thanks
Ross400
Posts: 2
Joined: Mon Mar 25, 2024 11:42 am

New Member - Loss of Sensation

Postby Ross400 » Tue Mar 26, 2024 9:40 pm

I am a new member to FrankTalk. I have experienced a loss of pleasure sensation following treatment for in 2016 prostate cancer (androgen, external radiation, brachytherapy) and subsequent treatment in 2020 for radiation scarring (urethroplasty). I have also had an implant. Multiple urologists have told me that the cause is multifactorial - the original disease and all the treatments cumulatively - and that there is no remedy for this condition. Seeking thoughts and guidance from others who may have experienced this situation: how to navigate this loss? how to manage the deep feeling of deprivation?

User avatar
bldoink
Posts: 3920
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: New Member - Loss of Sensation

Postby bldoink » Tue Mar 26, 2024 10:24 pm

Ross400 wrote:I am a new member to FrankTalk. I have experienced a loss of pleasure sensation following treatment for in 2016 prostate cancer (androgen, external radiation, brachytherapy) and subsequent treatment in 2020 for radiation scarring (urethroplasty).


Ross, welcome to the forum.
It sounds like you've had a tough go of it. I had an RP 13 years ago and radiation recently but I haven't had to deal with the hormone treatment, at least not yet. With your history having the cause diagnosed as multifactorial isn't surprising to me. I certainly have reduced sensation due to nerve damage but I wouldn't call it loss of pleasure sensation exactly. I assume you're not just talking about reduced sensitivity in your dick. Is this something that presented soon after your original treatement? Are you married or have a sexual partner?

Good luck.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

Ross400
Posts: 2
Joined: Mon Mar 25, 2024 11:42 am

Re: New Member - Loss of Sensation

Postby Ross400 » Wed Mar 27, 2024 11:56 am

This is a complete loss of pleasure sensation (not pain, though, as surgeon explained, pain nerves are more important -protective-than pleasure nerves). This presented after recovery from urethroplasty, but before implant (which I had misguided belief might help restore some sensation). I am married (42 years) and this has had a significant complication to that relationship, which we are also now trying to navigate.

User avatar
bldoink
Posts: 3920
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: New Member - Loss of Sensation

Postby bldoink » Wed Mar 27, 2024 12:37 pm

OK, thanks for your response. We will also be married 42 years next month :shock: :D
I'm still a little confused. I'll sent you a PM (private message) within the forum later tonight or in the morning. Life can certainly throw some curves!
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

Cernfan
Posts: 26
Joined: Sun Mar 24, 2024 4:05 pm

Re: New Member - Loss of Sensation

Postby Cernfan » Thu Mar 28, 2024 7:09 am

Take it from me, one who works in the medical field in the field of pain management, nerves take many years to recover from trauma. You may find that your pleasure sensations begin to return and bud new sensory nodules as time goes by. For example, sometimes after spinal surgery, the nerves may take up to three years or more before they begin to reconnect with sensation in some areas. The nerves for pleasure in the penis run very close to the skin so I am hopeful for you that in the years to come your pleasure will return. Try to be patient but reassure yourself that they will return. You may even find heightened sensation in some areas of your penis that are new to you. Please don't give up hope. I have seen nerves regenerate themselves. I think yours can too.

User avatar
bldoink
Posts: 3920
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: New Member - Loss of Sensation

Postby bldoink » Thu Mar 28, 2024 1:31 pm

Ross400 wrote:...I am married (42 years) and this has had a significant complication to that relationship, which we are also now trying to navigate.

PM finally sent. Check the upper right of your forum page.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

Never_Enough
Posts: 177
Joined: Fri Nov 24, 2023 7:54 am

Re: New Member - Loss of Sensation

Postby Never_Enough » Thu Mar 28, 2024 2:55 pm

Ross400 wrote:This is a complete loss of pleasure sensation (not pain, though, as surgeon explained, pain nerves are more important -protective-than pleasure nerves). This presented after recovery from urethroplasty, but before implant (which I had misguided belief might help restore some sensation). I am married (42 years) and this has had a significant complication to that relationship, which we are also now trying to navigate.


Just something in trying to understand from people with the Psycological effect of sexual dysfunction.

In what way has it had a significant effect on the relationship?
38 m UK

Psychogenic ED since forever fewer problems being fully erect alone.
2 kids, 3rd on the way. Long term partner.
Chronic pelvic pain pudendal neuralgia and muscle tightness in late 2023 onwards making ED worse.
Cialis 5 mg daily and 15 mg as prn

Martin6469
Posts: 610
Joined: Tue Feb 18, 2020 12:22 pm
Location: St. Louis, USA

Re: New Member - Loss of Sensation

Postby Martin6469 » Fri Mar 29, 2024 2:16 pm

Ross: While your nerves are coming back, you might do what my wife and I do: dildo play.

Hopefully this will satisfy her somewhat in the interim.
Age 79 in 2024. On testosterone replacement due to hypothalamus malfunction. (Attention depressed guys: low testosterone is a cause.) Healthy health nut but ED due to getting old. Like to keep enough cardiovascular ability to thrust for 30 min.

User avatar
bldoink
Posts: 3920
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: New Member - Loss of Sensation

Postby bldoink » Fri Mar 29, 2024 2:53 pm

Never_Enough wrote:In what way has it had a significant effect on the relationship?

Ok, I'll opine:

It depends on the woman. The varity is bewildering. Some can't seem to get over no longer being the cause of the erection. Of course they still are, they're why we're injecting, or whatever ED solution is being used. Some women are just very shallow being brought up to be a spoiled princess. They get upset if things don't work the way they think they should in their perfect dreams. It may be all about them and they don't want to make any comprimises as life changes things. They just want things the way they want them and have no patience. Choose your mate wisely.

Fortunately many women are kind, wise and love their man. They will be patient and try to make things work to bring pleasure to both parties in the relationship.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Not nerve sparing. C in margins. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ 8 - 14 units. Originally Edex20, then compounded PGE due to cost. Inject. 12 yrs. It works. Treasure coast of FL.

Spontaneous1
Posts: 333
Joined: Fri Apr 09, 2021 10:14 am
Location: Central Pa.

Re: New Member - Loss of Sensation

Postby Spontaneous1 » Fri Mar 29, 2024 5:31 pm

I'm glad I have the understanding, wise, and loving one. She's always #1 in my world, and I am in hers.
Retired 65 y.o. Married. Moderate ED since 2019. Use constriction band ocassionately to help maintain erection, or Cialis/Viagra. Nocturnal/morning erections returning with VED usage. Lower libido than before.


Return to “Introductions and Hellos”

Who is online

Users browsing this forum: No registered users and 4 guests